Nancy’s Story

January 18, 2012

I have Primary Bilateral Lymphedema, which means I was born with an inadequate lymphatic system. My doctors throughout my life, did not know what was causing my feet to swell, because Lymphedema information was not widely known. I was treated for years with diuretics, which do nothing for Lymphedema. My feet would be so swollen and [...]

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Rita’s husband’s Story

November 25, 2011

My husband is now 64. His medical history up until 2000 (when he was 53) was almost non-existent. Right before Christmas, he was diagnosed with congestive heart failure and coronary artery disease – and was rushed into surgery for a quadruple bypass. Next came diabetes – and that progressed to insulin 4xday. Then about 2 [...]

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Karen’s Story

November 21, 2011

Sentenced to Life in Bed, but I escaped. I have defied the odds more than once, but right now I will tell you about my lymphedema. In 1991 I had major cancer surgery. A malignant melanoma was removed from my right thigh and my lymph nodes were removed. My life was changed forever. Malignant Melanoma [...]

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Brad’s Story

November 21, 2011

My name is Gail.I am writing about my son Brad. When Brad was five years old he had a surgery to have a lymph node removed from his pelvic area.He had the surgery to remove a lymph node which the Doctor said was active around it.He had the surgery and things went well. Being young [...]

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Tami’s Story

October 31, 2011

My name is Tami. I was diagnosed with Breast Cancer in January 2011. After my lumpectomy surgery in February, my surgeon gave me the news that microscopic cancer cells were found in my “centinel lymphnodes” and that it required that I have a “lymphnode disection” which takes more lymphnodes from under the arm pit area. [...]

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Arthur’s Story

October 24, 2011

I am suffering from Lymphedema, where (untreated) my legs swell up to 110% of their normal volume. Treated (continual bandaging, 7 items per leg, every second day, 15 minutes per leg) they are reduced to normal size. I only wish I could attach pictures to this email. My lymphedema began about ten years ago after [...]

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Linda’s Story

October 23, 2011

TO START LYMPHEDEMA IS NO FUN.!!!!! NOW THAT THAT IS OUT OF THE WAY, HERE IS HOW MY STORY BEGINS. I GOT A BLOOD CLOT AFTER A SURGERY WHEN I WAS NINETEEN. I HAD TO WEAR A COMPRESSION STOCKING ON MY LEFT LEG FROM MY TOES TO MY KNEE BECAUSE OF DAMAGE BLOOD VEINS. THIS [...]

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Elizabeth’s Story

October 23, 2011

This is a story about my mother, a woman who because of medications such as Fosamax, has broken both her femurs, shattered her ankle, and that is just a few of the bones he had broken. Then March 2011 came around, and her legs did not look good, her doctors gave her antibiotics but they [...]

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Jennifer’s Story

October 18, 2011

I was diagnosed with adenocarcinoma of the uterus (endometrial) cancer on May 22, 1997. First and foremost, the word lymphedema would be one word t my vocabulary would soon recognize, but the impact of lymphedema would not affect me until September 2000. I had a full hysterectomy and had my ovaries removed along with 12 [...]

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Catherine’s Story

October 5, 2011

In 1992 at the age of 33, I was diagnosed with cervical cancer. I had a modified radical hysterectomy, part of my pelvic wall removed and the removal of 23 lymphnodes bilaterally in my groin. In 1997, I was officially diagnosed with Secondary Lymphedema in my left leg. I began noticing symptoms 3 months after [...]

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