Beverly’s Story

December 7, 2015

I have a mostly unknown, totally misunderstood, incurable, & very lonely condition called lymphedema (LE). Even the medical community don’t know much about it. Both my legs & feet, my right hand, left arm, & left breast are affected. My LE is inherited (but got worse after a fight with cancer in 1994). Family history […]

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Rosemary’s Story

December 4, 2015

I developed lymphedema early in my life and without any identified cause. One day in December 1978, when I was a healthy and active 20 year old, I woke up to find my right leg about twice the size of my left. I assumed it was a temporary condition caused by a long run I […]

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Danielle’s Story

August 31, 2015

In 2014 I was diagnosed with stage 4 invasive ductal breast carcinoma. I have spent the last year undergoing five surgeries including a right modified radical mastectomy, ongoing chemotherapy and radiation therapy. After radiation therapy I developed lymphedema in my torso. I have been unable to wear a bra without pain due to the fluid […]

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Anita’s Story

August 13, 2015

When I was in my 30’s I remember my father wearing those ugly white Ted hose. He told me he had Lymphedema. When I turned 40 I found out what that word was. I woke up one morning with redness in my lower legs and the swelling started. Little did I know I was in the […]

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Julia’s Story

August 4, 2015

I was treated for invasive cervical cancer in 1977 at the age of 24. A series of surgeries culminated with a radical hysterectomy in which over 30 of my lymph nodes were removed. The swelling in my left foot gradually began appearing in 1982. I was an avid dancer so I thought the swelling was […]

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Marie Claude Julie’s Story

May 9, 2015

I’m a 53 years old woman who lives with secondary lymphedema of my left leg caused by cancer treatment seventeen years ago. Swelling and decreased functional use of my left leg have been increasingly more difficult to accept because after surviving cancer I was rather convinced that I was invincible. Physically strong, back in my […]

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Steven’s Story

May 1, 2015

My name is Steven and my wife Kathleen is a physician, a loving mother and also a patient that suffers from Lymphedema Praecox. As you know, lymphedema praecox is a condition that causes severe swelling of the soft tissues within an extremity due to the collection of excessive amount of lymphatic fluid. Kathleen developed this […]

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Debbie’s Story

March 14, 2015

I was diagnosed with lymphedema in 2011 after showing growing signs of the disease since 2000. I have it in both legs and learned that my paternal great grandmother had it as well in both legs. Since being diagnosed in 2011 my legs have grown larger. I had to stop working in 2013. I have […]

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Jake’s Story

November 26, 2014

I have primary lymphedema and I wanted to share two storytelling performances I did in NYC on my experience with lymphedema. Thanks for watching, and you can view my website at  http://jakemiles.com. Performance on LE and how it affects me as an adult: https://www.youtube.com/watch?v=41s1HDwxXRQ   Performance on growing up with LE and an associated protein enteropathy: […]

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Nicole’s Story

September 22, 2014

Lymphedema has always been a part of my life. My mother developed lymphedema in her early 20s. As a young child, I remember having to help my mother with daily activities such as bathing dressing and even house hold chores. At the age of 12 I myself developed lymphedema but was not diagnosed until the […]

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