Nancy’s Story

August 26, 2014

I was diagnosed with lymphedema in 2003. The doctors say it was a result from my hysterectomy a few years earlier. Both of my legs are hugely swollen. I attended a lymphedema clinic in 2003 and 2004, but can’t continue to afford it. The swelling puts extreme pressure on my knees and makes it difficult […]

Read the full article →

Andrea’s Story

August 22, 2014

At the age of 22 I woke up one morning with a swollen left leg. The first reaction was that I was bitten by a spider but after close inspection there were no markings, nothing that would prove my theory correct. I went to every type of doctor known to man; including the gynecologist. I […]

Read the full article →

Bethany’s Story

August 21, 2014

I am one of the lucky ones because my lymphedema was diagnosed early on in 2012 a couple of months after having surgery for Borderline Ovarian Cancer. I say ‘lucky’ because Lymphedema is a very misunderstood disease in the medical field that often goes undiagnosed, progresses and can even have complications that can lead to […]

Read the full article →

Kimber’s Story

August 21, 2014

I am a breast cancer survivor who did well through surgery and treatment, however, I developed lymphedema due to the radiation treatment.  Lymphedema has caused me to miss extraordinary amounts of work and I have had to stop many activities (running, golfing, kayaking, softball) that kept me healthy for four years now.  Two years after […]

Read the full article →

Jillian’s Story

August 20, 2014

I do not have cancer; I have never had cancer and yet, at thirty-two years old I live in tremendous pain and constant fear of infection. It’s believed that my Lymphedema stemmed from a cellulitis infection in my pointer finger. My right arm swelled up one night when I was about 19, and it never went […]

Read the full article →

Susan’s Story

August 20, 2014

I was given (84) 20mg prednisone for allergic reaction. Was in college and 2 semesters left for my degree. I developed lymphedema, neuropathy and several other side effects. Was told by 2 specialist I was bedridden. The pain is excruciating day and night. I have lymphedema in both legs and upper edema. I used to […]

Read the full article →

Jamie’s Story

July 31, 2014

I have had lymphedema for several years. It took three years to get a diagnosis and another year to find proper treatment. My first therapist said my condition probably evolved from two factors: 1) my back surgery and subsequent blood clots at age 17, and 2) hereditary factors since my mother also had the condition, […]

Read the full article →

Yolanda’s Story

July 14, 2014

My friends and family know me to be a happy, outgoing, giving lady. I love helping others in need and supporting reputable causes. I unfortunately suffer with Lymphedema. It can be painful and debilitating most of the time. In the year of 1994, I became gravely ill. I was in my Junior year of college. […]

Read the full article →

Beth’s Story

July 14, 2014

On September 13, 2013 in the early evening, our family’s life changed dramatically. My 9 year-old daughter Sarah, said, “Mommy, look at my ankle.” I could see it was swollen and called the doctor’s office immediately. Our pediatrician told me to take her to the nearest emergency room because it might be a blood clot. […]

Read the full article →

Renee’s Story

July 9, 2014

im not a typist so forgive the mistakes i developed lymphedema about a year after my bc treatments and surgeries were done with i was spring cleaning and i pinched my arm ever so slightly in a sliding closet door witch caused a black and blue mark then wouldnt u know it i noticed my […]

Read the full article →

James’ Story

July 2, 2014

I was diagnosed with Primary Lymphedema Tarda approximately six years ago if memory serves. What a life changing diagnosis? From the first six weeks of physical therapists to having to purchase very expensive compression socks that are not covered by my “good” insurance provided by my employer I have had this disease touch nearly every […]

Read the full article →

Donna’s Story

June 24, 2014

My husband has severe lymphedema in his lower extremities. He was diagnosed with this disease about 3 years ago and has been suffering with it ever since. We are not sure what caused this problem with him but we do know that his grandmother had it. We have tried the wrapping and massage and it […]

Read the full article →

Merle’s Story

June 19, 2014

My story goes back to my grandmother, mother, aunts, and female cousins. Lympedema (LE) goes back at least that far on my mother’s side of the family. My childhood memories are filled with visions of swollen, shapeless legs. Until I went to school, I thought this was how legs were supposed to look once you […]

Read the full article →

Teresa’s Story

June 4, 2014

I have always been over weight my whole life and pear shaped. My legs where always large so I never really noticed that they were swollen not just fat. In January 2013 I went to the ER with a sore on the back of my leg that would never heal and always soaked my bandages. […]

Read the full article →

Lorraine’s Story

May 27, 2014

After at least 5 stays in the hospital with cellulitus over a period of 10 years, with all my savings spent on tests and supplements, I found lymphedema on the internet two years ago! The only other people that I knew had it were my mother and then she told me about her sister. Since […]

Read the full article →

Jo’s Story

May 24, 2014

I am a Breast Cancer Survivor. 2012 I had double mastectomies, axillary lymph dissection, chemo, & radiation. I developed lymphedema of my right arm, hand, chest & back. It is a daily struggle to cope with the physical deformities & pain caused by lymphedema; Embarrassment, depression, fear of infection, difficulty performing many tasks, disfigurement, clothes, […]

Read the full article →

Sherry’s Story

May 23, 2014

I was diagnosed with stage IIIC breast cancer on September 10, 2013. I underwent extensive chemotherapy until January 2, 2014 and had a double mastectomy on January 24, 2014. I started having the lymphedema not long after surgery and started with physical therapy before starting my radiation. During radiation my right arm swelled continually as […]

Read the full article →

Bonnie’s Story

May 4, 2014

I was diagnosed with cervical cancer in 1979. My ob/gyn, who also happened to be a surgeon and cancer specialist, recommended a radical hysterectomy–lymph nodes, uterus, ovaries, and 1/3 of my cervix. I was 37, a single mother with a 10 year old daughter, with no intention of having more children so it seemed like […]

Read the full article →

Becky’s Story

April 19, 2014

I am a cancer survivor. When I had all my lymphnodes removed in my groin area removed I never once realized the impact it would cause on my life and now I do. It has caused me a lot of stress and I cant afford 400.00 for a sleeve for my leg every 4 to […]

Read the full article →

Karen’s Story

March 28, 2014

My mother has lymphedema in both of her legs, which the doctor just diagnosed a couple of weeks ago. This was discovered less than two weeks after my father passed away and my mother had been his primary care giver. She is receiving treatment at St. Mary’s Rehabilitation facility in Huntington, WV. She has to […]

Read the full article →