- If you are a member of the media and would like to arrange for an interview please Contact Us.
- If you would like to read a letter to the lymphedema community from our original bill sponsor Congressman Larry Kissell of North Carolina, Click Here.
- If you want to view past news coverage and a variety of press releases about the bill from the office of Congressman Kissell, Click Here.
Below, Heather Ferguson talks about her family’s journey, beginning when their son Dylan was born with primary lymphedema. She chronicles their difficulty in first getting a proper diagnosis and later finding out their insurance company would not cover his compression garments. This set her on the path of advocating for improved insurance coverage for the disease, first by getting a North Carolina State mandate passed in 2009 and then meeting with her Congressman, Larry Kissell, who became the original sponsor of the Lymphedema Treatment Act in 2010.