Share your lymphedema story
Thank you for your interest in the “My Lymphedema Story” campaign! Please use the submission form below if you wish to share your story.
How will my story be used?
Your story, in part or full, may be shared with members of Congress and/or used for other advocacy efforts related to the bill. With your permission we will also post your story on our blog, using only your first name.
Who can participate?
Anyone whose life has been touched by lymphedema – patients, caregivers, friends or family members, healthcare professionals, etc.
Can I read other people’s stories?
Yes – a sampling of submitted stories will be periodically posted on our blog.
What should I include?
In general,include anything you feel might be useful to help convince someone why passage of this legislation is needed, but try and keep it concise and 500 words or less if possible. If you are a patient, here are some key items of importance: the cause (if known) and whether your lymphedema is primary or secondary; if your lymphedema is the result of cancer, include which kind; indicate if you have ever been denied coverage for your treatment, or only been granted partial coverage, and any difficulty that has caused you; describe how lymphedema has affected your life; and explain how this legislation will improve your quality of life if passed.
If you would like to send pictures to accompany your story please email them to Stories@LymphedemaTreatmentAct.org. Be sure to include your complete contact information to ensure that your photos are properly matched to your story. Especially in the case of lymphedema, a picture really can be worth 1000 words!