Resources for Patients

Below is an evolving list of information sources that may be useful to those who suffer from lymphedema and/or their caregivers.  If you know of a resource which should be added to this page please Contact Us with your suggestion and provide a link to the site you are recommending.

Lymphedema Organizations:

American Lymphedema Framework Project – Lighthouse Lymphedema Network
Lymphatic Research Foundation - Lymphedema Resources
Lymphology Association of North America – National Lymphedema Network

Lymphedema Online Groups:

Elymphnotes – Lymph Notes – Lymphedema Awareness Foundation – Lymphedema Community
Lymphedema People – Lymphland – Step Up-Speak Out

Lymphedema Providers -
directories to find lymphedema doctors and/or certified therapists in your area:

Lymphology Association of North America – Lymphedema Blog – Lymph Notes
National Lymphedema Network – Step Up-Speak Out

Compression Garment Assistance Programs:

National Lymphedema Network / Marilyn Westbrook Garment Fund

Lymphedema Studies, Clinical Trials, etc -
please participate to help researchers find better treatments and maybe even a cure!

Clinical Trials - Genetics Study – Patient Registry

Lymphedema Treatment Products, Manufacturers:

BiaCare - BSN Medical /Jobst - Farrow Medical Innovations – ImpediMed – JoViPak Corporation - JUZO
Lohmann & Rauscher - LympheDIVAs – mediUSA – My Sassy Sleeve – Solaris – Torbot Group/Jobskin Division

Lymphedema Treatment Products, Suppliers:

Academy of Lymphatic Studies Store – Alala -Ames Walker International – Brown Medical Industries
Carolina Apothecary – Close to You - In The Pink - Lymphedema Products – SunMED Medical

Cancer Related Information:

American Cancer Society – Breast Cancer Action – Breast Cancer Network of Strength – Colon Cancer Alliance Komen Advocacy Alliance – LiveSTRONG – Living Beyond Breast Cancer
NC Comprehensive Cancer Program – Sarcoma Foundation of America