ProPublica is working on an investigative news story about health insurance denials and looking for input from patients, providers and others! If you are willing to share your own tale of insurance denials, this is another way you can help shed light on the barriers lymphedema patients face trying to access proper care! Click here to learn more and access their submission form.
Primary lymphedema patients and their family members are invited to participate in this year’s Rare Disease Week on Capitol Hill. This event, hosted by the Rare Disease Legislative Advocates, will include meetings with congressional offices that will be scheduled for you. You can also participate in some of the events virtually. The deadline to register is February 17th. If you plan to attend and have questions about what lymphedema-related topics to cover in your congressional meetings, please contact us.
If you are on Facebook or Twitter, watch for our post and tweet this Saturday, February 4th, on World Cancer Day. They will contain the graphic below. Even if you don’t have cancer-related lymphedema, you can help us spread awareness about this common cause by sharing these messages.
And if you haven’t yet, please take a moment to check this form and ensure that your contact information is up to date. Although the LTA has passed, our work is not done. There may be times this year and beyond where your advocacy is needed, and it’s important that we have your current information so we know what congressional district you are in. It will take less than a minute to check this form and ensure that your contact information is up to date.
Thank you!
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaTreatmentAct.org
 |
