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  Do you have personal or business plans to be in or near Washington, DC this fall? Or do you live nearby? If so, why not meet with your members of Congress about the Lymphedema Treatment Act while you are there! We can schedule your meeting(s), provide you with materials to bring, and coach you […]

  Over the last few years we have collected over 600 patient and caregiver stories through our My Lymphedema Story campaign, but we still need more! Please consider submitting your story if you haven’t already done so. These stories are shared with members of Congress and their staff. They play a vital role in helping […]

  Both the House and Senate are now in recess until after Labor Day. During this time, Town Halls and District Meetings are great opportunities to speak to your members of Congress directly! All of the members listed below have NOT cosponored the LTA yet. DISTRICT MEETINGS: everything you need to schedule, prepare for, and […]

  On Wednesday of this week the Senate Finance Committee put forth the Prescription Drug Pricing Act of 2019. The Lymphedema Treatment Act was one of a number of other provisions then added as amendments! On Thursday, some of the amendments, particularly those not related to drug pricing, were withdrawn by the sponsors of those […]

Is your Representative on the list below? If so, he or she is among the 60 House members who cosponsored the LTA in the last Congress but have not signed back on yet this session. Please take a moment to call his or her office using the phone number and script provided below my signature. […]

  Although primary lymphedema like my son was born with is rare, secondary lymphedema, particularly consequent to cancer treatment, is not. Cancer survivors have a lifetime risk of developing lymphedema. In honor of July’s Sarcoma Awareness Month, we are proud to share our board member Bill McCann’s survivorship story. Sarcoma has a 30% lymphedema incidence […]

  61% of the members of Congress have already cosponsored the LTA, but 39 Senators and 167 House members have not signed on yet. Persistence is the key to getting their support! Over 7,000 bills have already been introduced in this Congress. Over 600 of them are healthcare bills. Each congressional aide typically handles several […]

If one or both of your Senators are among the 40 who are not yet cosponsoring the LTA please contact their offices this week! ACTION STEPS: 1.) Call his or her office using the phone number and call script here 2.) Send an email using this form 3.) Forward this email and ask others to […]