Thanks to everyone who participated in our January action item, we made a lot of progress this month.
- Over 1,300 advocates sent email letters to their three members of Congress, totalling over 4,000 letters urging Congress to pass the LTA in 2022!
- All of this outreach also garnered the bill 17 more cosponsors, launching us back into first place as the most supported healthcare bill!
The table below shows the top 10 most supported healthcare bills in this Congress, and you can check the cosponsorship status of your members here.
We’ll be rolling out our February action item soon. In the mean time, we encourage primary lymphedema patients to consider participating in Rare Disease Week, hosted by the Rare Disease Legislative Advocates group.
This event includes virtual congressional meetings on March 1st and 2nd, during which you can ask your members to help pass the LTA. The event is free, but you must register by February 11th. Additional details are below.
Thank you for helping us start the year strong!
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaTreatmentAct.org
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Information from the Rare Disease
Legislative Advocates group (RDLA) about Rare Disease Week:
Primary lymphedema patients are invited to join rare disease advocates from across the country for virtual Rare Disease Week on Capitol Hill 2022. Registration is now open!
Rare Disease Week will take place February 22nd to March 2nd. Rare Disease Week is an amazing opportunity to learn about policy that impacts rare disease patients, network virtually with others in the rare disease community, and meet with your legislators on Capitol Hill to advocate for rare diseases.
During virtual Rare Disease Week advocates can win a grant for their rare disease non-profit organization of choice by attending events such as the caucus briefing, legislative conference, and more! Click here to check out the agenda and register.
RDLA will also be offering a series of Rare Disease Week training webinars and open office hours. Click here to register for Rare Disease Week Training Webinars.
