Denise’s Story

I have primary lymphedema in my left leg which was diagnosed in 1979. I’m 60 yrs old and approaching Medicare age. Lymphedema prevents me from doing things most people enjoy especially if it could produce injury. With any injury comes the potential for infection, hospitalization and a host of other problems. I have a pump I use as needed as well as a custom garment I wear daily. My family understands this condition but it always draws attention when I’m in public. I have trouble getting cloths and shoes to fit & wearing boots is impossible. I have had several hospital stays over the years as well as several episodes of cellulitis. One of which occurred during pregnancy a few days before I delivered our 1st child. The cost from those stays as well as numerous prescriptions for antibiotics has been costly. Fortunately, mine is well under control thanks to the physician that diagnosed it 34 yrs ago. Without awareness, early treatment and follow up visits with my doctor, my costs would be much greater. I was denied coverage for my first pump and my parents had to buy this costly equipment. I have since had good coverage although only partial costs have been covered which was financially difficult. As a retired nurse of 38 yrs and the last 6 yrs having worked for a Vascualar doctor who specialized in lymphedema, I know first hand as well as having seen hundreds of patients with lymphedema the cost, infections, wounds, not to mention discomfort that can arise from being denied benefits for the treatment and maintainence of this disorder. Please support the Lymphedema Treatment Act to not only save the patient expensive costs but insurance companies as well because of the very real problems that can and WILL result in the future if a patient is not treated early and completely. Thank you.