While we wait for the reintroduction of the Lymphedema Treatment Act there are a variety of things you can do to support its eventual passage, all outlined under the “How You Can Help” menu on our website.
If you have not yet made a submission to our “My Lymphedema Story” campaign please consider doing so. We hope to have all 50 states represented, but right now do not have any stories from the following states/territories: AL – AK – HI – ID – KS – LA – MN – MO – MT – NE – NM – ND – RI – SD – UT – VT – WV – WY – DC & all other territories. You can read the stories submitted to date on our blog.
Also, your state’s advocacy team could really use your help. For more information please visit the “State Teams” page of our website and/or review the attached State Team Handbook . So far we have 201 state team members in 38 states – a great start but still a long ways from where we need to be, which is having members from every Congressional district in the country! Remember that this is an all grassroots effort and our continued progress depends on the involvement of people just like you.
Last but not least, this marks the one year anniversary of the addition of the “Action Center” to our website. This vital tool enables you to quickly and easily write your members of Congress, contact the media, and more. The Action Center, while being a costly on-going expense, has been a huge boon to our advocacy efforts! We are so very grateful for the support we receive from the following sponsors, who make the Action Center and our website possible: mediUSA, Solaris, JoViPak, Juzo, Jobst, LympheDivas, FarrowMed, and Sigvaris.
We wouldn’t be where we are today with out the support of the many individuals, organizations and industry partners who have gotten behind this patient-driven movement… thank you all!
With gratitude,
Heather Ferguson
Founder and Executive Director
Lymphedema Advocacy Group
www.LymphedemaTreatmentAct.org
info@LymphedemaTreatmentAct.org
