Lymphedema and the Lymphedema Treatment Act are the topic of the Medical Mysteries column in today’s Washington Post!
The article chronicles my family’s experience with primary lymphedema, and our struggle to obtain a proper diagnosis and treatment for my son Dylan, who, along with his twin brother Devdan, turns nine-years-old today.
Members of the Lymphedema Advocacy Group will be on Capitol Hill this week meeting with offices. It’s so important that Congress hear from you too. Everything you need is on our site, and it’s as easy as 1-2-3!
Step #1 – E-mail your Rep
Step #2 – Call your Rep
Step #3 – Contact your Rep Via Social Media
Also of note, the 18th State of Georgia Lymphedema Education and Awareness Program, sponsored by the Lighthouse Lymphedema Network, is being held on October 24, 2015 in Atlanta, GA. For more information and to register, please visit their website
And for our members who are also affected by lipedema, the Lipedema Project is happy to announce the release of The Disease They Call FAT! The first documentary on lipedema, The Disease They Call FAT is from the lipedema community for the lipedema community. Director/producer Catherine Seo shares the information she wishes she’d had in her own journey for answers about lipedema. Featuring interviews with over 70 doctors, surgeons, researchers, advocates, therapists, and “lipedema ladies” worldwide, this is more than a film – it’s the voice of a movement. People from around the world are raising their voices to bring awareness to lipedema – the need for research, diagnosis, education, and legal recognition. A global community is coming together and beginning to create impact in many ways. Every voice makes a difference. YOUR voice can make the difference. The Disease They Call FAT is available for purchase on DVD, download or online streaming
Thank you for your support of the Lymphedema Advocacy Group and the Lymphedema Treatment Act!
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaTreatmentAct.org
