We hope that you and yours are staying safe and healthy, and are pleased to
share with you two FREE items of interest to the lymphedema community.
The Canadian Lymphedema Framework is providing one-time complimentary online access to the Summer 2020 issue of Pathways lymphedema magazine, as a way of giving back to the lymphedema community during this COVID pandemic. They hope it provides helpful information and a feeling of connection during this isolating time. The Summer issue of Pathways has been tailored to readers who are seeking more information about the virus and how it might affect their own lives. You can access the magazine online here. Although this is a Canada-based publication, the articles and information are universal.
The Rare Disease Legislative Advocates (RDLA) would like to invite primary lymphedema patients and their family members to participate in Rare Across America. All types of primary lymphedema (also referred to as congenital or hereditary lymphedema) are considered rare. This is an opportunity to meet with your Members of Congress close to home in the state and district offices during the August recess and advocate for the Lymphedema Treatment Act! RDLA schedules all meetings and provides online training ahead of time. If in-person meetings are not possible in August they will hold meetings virtually.
We are also available to answer questions or provide any additional support you may need in preparation for your meeting. And after the fact, we’d love to hear feedback on how your meeting went.
Thank you for your advocacy and stay well!
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaTreatmentAct.org
