Bethany’s Story

I am one of the lucky ones because my lymphedema was diagnosed early on in 2012 a couple of months after having surgery for Borderline Ovarian Cancer. I say ‘lucky’ because Lymphedema is a very misunderstood disease in the medical field that often goes undiagnosed, progresses and can even have complications that can lead to death. I am also an Occupational therapist, who knew the questions to ask prior to surgery and had questions about Lymphedema. I was told ‘it is rare’ and my concerns were quickly disregarded. Since being diagnosed I have had medical complications such as cellulitis, loss of income, costly-out of pocket expenses and fear. I fear what will happen if this progresses any further. Would I someday be unable to walk? Or what if I can’t continue to pay for compression garments out of pocket? I have been denied coverage for the much needed compression garments, which are required to manage this disease, because they aren’t considered durable medical equipment. Lymphedema patients deserve to have coverage for garments, Pumps and therapy and any other treatments that are recommended by the medical community and professionals.