Ann’s Story

April 23, 2011

Sometimes unknown things in life frighten oneself as did this vaguely familiar word called “Lymphedema” which became a part of my life following surgery for a routine bladder tuck and hysterectomy. At the age of 63 years, I had been blessed with exceptionally good health with a good life style surrounded by personal and professional […]

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Terri’s Story

April 23, 2011

I have lymphedema as a result of a mastectomy and radiation treatments for breast cancer.  About a month after my surgery, I had lymphedema swelling in my arm, but none of my doctors paid any attention to it, nor did they prescribe any treatment. My untreated lymphedema promoted another serious condition, a skin infection, caused […]

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Jackie’s Story

April 23, 2011

When I was 17, my right ankle began to swell intermittently for several months in a row. Socks and shoes became uncomfortable, I became self-conscious of my deformed ankle and began hiding it under pants and closed toed shoes in the middle of the summer. I saw several general physicians and specialists trying to find […]

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Sheila’s Story

April 23, 2011

My Lymphedema is primary and started when I was 14. 1983. It started with a slight swelling in my left ankle. I was taken to a dr. who thought it was a blood clot and put me on the blood thinner Coumadin.  I was on the drug for almost 2 weeks, when I started getting […]

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Joann’s Story

April 23, 2011

I was diagnosed with lymphedema at the age of 28 due to treatment I received for stage 4 melanoma. It has been a constant battle to keep the swelling in my leg down to a degree that I can manage it. I do wear a Jobst custom support stockings and an overnight garment to keep […]

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Peggy’s Story

April 23, 2011

I am 39 years old, a wife and a mother of three, and I am also a small business owner. I have secondary lymphedema in my left leg. About 11 years ago, I woke up and my left ankle was swollen to about double its size. I had no idea what was going on; I […]

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Jennifer’s Story

April 23, 2011

I feel strongly that this nation’s medical insurers are not adequately addressing an important medical issue.  Lymphedema is a very serious disease and there is no cure, but it is manageable if afforded the appropriate treatment.  Unfortunately, many insurance companies do not provide for the simple preventative treatment that allows an individual with the disease […]

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Jenny’s Story

April 22, 2011

I was born with a condition called Spina Bifida, which, in a nutshell, means I am paralyzed from the waist down, with some loss of bladder and bowel control as well.  Not fun, but life goes on….. My swelling is not caused by a “true” lymphedema, but presents in much the same way. My diagnosis is […]

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Jan’s Story

April 22, 2011

My arm lymphedema is secondary, caused by removal of lymph nodes by axial dissection as a result of breast cancer. I was 44 when I first noticed symptoms of swelling. Four months after the onset of symptoms I received a diagnosis from a breast surgeon who recognized it as lymphedema and referred me to a […]

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