Joyce’s Story

July 29, 2013

As I entered my 60’s, I noticed indentations in my legs when I removed my socks at the end of the day. One doctor I consulted said it might indicate a heart problem. As time went on, the swelling increased in my lower legs and they became red and hot and itchy. I then went […]

Read the full article →

Thomas’ Story

July 29, 2013

I am 40 years old with lower left leg lymphedema for 6 years. I’m a heavy male 6 foot 2 400 pounds six years ago while walking to my car I had a pain in my left putter ankle the next day there was a lump on my outter ankle left leg no pain. Thought […]

Read the full article →

Joan’s Story

July 19, 2013

In 1998 I was diagnosed with invasive ductal carcinoma of the right breast and lobular carcinoma-in-situ of the left breast.  Having a bilateral mastectomy, 26 lymph nodes were removed from the right and 14 from the left breast.  After chemo was completed, I had swelling in my right wrist and lower arm, but had not […]

Read the full article →

Jeanne’s Story

July 12, 2013

I have been diagnosed with primary bilateral lymphedema tarda in both legs. I have had several infections and been on many antibiotics since I was first diagnosed on January 3, 2013. I have to wear compression socks on both legs many hours of each day. I have to make sure my legs have healthy skin […]

Read the full article →

Maryanne’s Story

July 3, 2013

My lymphedema was a result of radical hysterectomy surgery for cervical cancer in 1982.  I was not advised, nor aware of lymphedema at any time by my doctor.  In 1993, more than 10 years after the surgery, lymphedema developed in my left leg, slowly swelling the ankle leg, groin, genital area, and often causing a […]

Read the full article →

Mary’s Story

July 2, 2013

I was diagnosed with stage four breast cancer in October 2010. My cancer spread and I underwent radiation a mastectomy on my left side and more radiation and a chemo pill daily. It was very difficult to get used to the idea I no longer had a breast and to get used to what I […]

Read the full article →

Christine’s Story

July 2, 2013

I was so excited to find this blog site. I have suffered from lower left leg lymphedema after uterine cancer in 2009. I had a hysterectomy and 19 nodes removed 10 on one 9 on the other. Immediately after surgery I had swelling in the pubic area that would swell from right to left and […]

Read the full article →

Sandy’s Story

July 2, 2013

In June of 2011 my life changed forever as a result of a mastectomy for breast cancer with the additional removal of 26 lymph nodes. I had never heard of lymphedema, but I have now lived with it for 2 years and it is very disabling. I had 10 weeks of therapy to get it […]

Read the full article →

Nancy’s Story

July 2, 2013

I am blessed to be a breast cancer survivor since 1984 at the age of 42. I had mastectomy surgery and removal of 14 lymph nodes, which were all free of cancer, another blessing. Eight months after surgery, swelling developed in my my right arm, hand and fingers. Back then I was told NOT to […]

Read the full article →

Alice’s Story

July 2, 2013

I had a total shoulder replacement on the left side due to arthritis. Two months afterwards, I noticed my left arm was swollen. I called my surgeon and he had me come in for a scan for blood clot. There was none so he sent me home, with no recommendations to see another physician and […]

Read the full article →

Cynthia’s Story

July 1, 2013

My mother was first treated for breast cancer in the 80’s, with a radical mastectomy and an overdose of radiation therapy. She developed lymphedema, and the only treatment offered at the time was a pump, which was so painful for her to use she refused to use it at all. As a result, her arm […]

Read the full article →

Barbara’s Story

July 1, 2013

I was diagnosed in 1994 with breast cancer. I had almost all the lymph nodes taken out on the affected side. Five years later I got lymphedema in that arm (right). There was nothing much said about the possibility of getting lymphedema 18 years ago. So, it was unexpected and horrifying. Wrapping the affected arm […]

Read the full article →

Beth’s Story

July 1, 2013

My name is Beth and I have lymphedema in both legs, my left leg is definitely the worst of the two. At the onset of the swelling I didn’t have medical insurance so I was unable to pursue treatment. By the time I did have insurance and finally found a therapist, there wasn’t one in […]

Read the full article →

Angela’s Story

June 6, 2013

My story starts with having breast cancer in 2004, I ended up with having right mastectomy..I had no chemo and no radiation,they tested lymph nodes with sentinel-lymphnode test which at that time hurt as much as severe pain days then my surgery was post-poned due to irregular heart beat that showed up that day-I then […]

Read the full article →

Sherry’s Story

June 6, 2013

My name is Sherry and I was diagnosed with Breast Cancer on August 8, 2012. I had a lumpectomy done on September 11, 2012 and everything seemed to be going well. I had no insurance but thanks to the State they have a program with Medicaid called the BCCTP (Breast Cervical Cancer Treatment Program). Through […]

Read the full article →

Sarah’s Story

June 6, 2013

I was diagnosed with bilateral lower extremity lymphedema in December 2001. From 2002-2004, I received manual lymph therapy and compression wrapping to reduce the swelling of my legs. During this same time I was hospitalized approximately 8 times for cellulitis, had a medi-port placed for IV antibiotics, and had weeks of home health care three […]

Read the full article →

Yvone’s Story

May 3, 2013

I was diagnosed with DCIS on September 11, 2009. I had the lumpectomy done and was to have the Sentinal node bx’d. However because my tissue was too thick, the dye was unable to reach the Sentinal node after two tries. So the surgeon decided to remove my axilla; which was 34 nodes. Turned out […]

Read the full article →

Rebecca’s Story

April 19, 2013

Hi, I am a breast cancer survivor of one year, and after chemotherapy, radiation, 4 surgeries, including lymphnode transferal, I still suffer from extreme lymphedema in my right arm and hand.  My mother also had lymphedema as a result of breast cancer, and has since passed away.  I have of course gone through extensive therapy, […]

Read the full article →

Laura’s Story

April 13, 2013

I was diagnosed with Primary and secondary Lymphedema in 2005. Since then, I’ve tried the flexitouch pump to no avail. I have been to 2 Lymphedema therapists; one at St. Francis and one at Baptist Memorial Hospital. However since I live on a fixed income, I cannot afford the cost of replacing the bandages every […]

Read the full article →

Sarah’s Story

April 9, 2013

When I was 9 years old, I sprained my ankle and my Mom knew something else was wrong because my ankle and part of my calf was too swollen and there was no break. After that I went from doctor to doctor of all specialties for 9 months (missing school often) until we were finally […]

Read the full article →