I am a 65 year old retired teacher. I was looking forward to spending my retirement years traveling, fishing, and quilting. My world stopped when I was recently diagnosed with Lymphedema in both legs. The nightmare began by trying to understand the condition, how I was going to get treated, and my quality of life […]

I had a lumpectomy for breast cancer in 2007. I joked to my friends that it was cancer lite because the lump was small, I had a week of radiation and no chemo. Within a few weeks my right breast and right arm started swelling. I was frantic thinking it was cancer again. I found out it […]

My husband is now 64. His medical history up until 2000 (when he was 53) was almost non-existent. Right before Christmas, he was diagnosed with congestive heart failure and coronary artery disease – and was rushed into surgery for a quadruple bypass. Next came diabetes – and that progressed to insulin 4xday. Then about 2 […]

My name is Gail.I am writing about my son Brad. When Brad was five years old he had a surgery to have a lymph node removed from his pelvic area.He had the surgery to remove a lymph node which the Doctor said was active around it.He had the surgery and things went well. Being young […]

I am suffering from Lymphedema, where (untreated) my legs swell up to 110% of their normal volume. Treated (continual bandaging, 7 items per leg, every second day, 15 minutes per leg) they are reduced to normal size. I only wish I could attach pictures to this email. My lymphedema began about ten years ago after […]

In 1992 at the age of 33, I was diagnosed with cervical cancer. I had a modified radical hysterectomy, part of my pelvic wall removed and the removal of 23 lymphnodes bilaterally in my groin. In 1997, I was officially diagnosed with Secondary Lymphedema in my left leg. I began noticing symptoms 3 months after […]

I was diagnosed at 64 years young, with non-cancer related, secondary, advanced-stage-two lymphedema in both legs – toe to torso is how I put it. In the concluding diagnosis by the specialist, the cause was a procedure and repeated aspirations over a period of months, by a qualified podiatrist. He was not required to know […]

One year ago, I had massive right lower leg/foot swelling secondary to KS. Even after 6 months of IV chemotherapy to the extent of losing all my fingernails and toenails and several layers on the palms of my hands and soles of my feet…I was still left with debilitating lymphodema. Not until the extraordinary efforts […]

September 11, 2009 my life, as I knew it, forever changed. After uterine cancer was diagnosed I went in for a total hysterectomy with lymph node removal for cancer staging. The pathology report showed that the cancer was contained and no further treatment was needed. I thought my “bump” in the road was over and […]