Hi my name is Bonnie. I was diagnosed with Lymphedema after having open heart surgery 5 years ago. I have it in both of my legs.
In the beginning I had to drive hour and 15 minutes 1 way 3 times a week for my wraps. It’s very hard to walk with the wraps on both legs and wearing surgical shoes. My daily treatment is laying in bed for an hour and a half 3 times a day with a machine that squeezes the fluid out of my legs. My day time stockings are $600.00 for 1 pair. They last 6 months. I can’t afford that, so I do without.
I need new compression supplies but they are $400.00 a leg. My insurance won’t pay for. I live in Arkansas and we have only 2 yes that’s right 2 places that will even treat lymphedema. How sad.
I could go on forever about this but they just don’t understand
!!
My grand baby lives in Chicago and I can’t even fly to see her. I did it once and ended up with very painful cellulitis in both my legs. The pressure in the plane was to much.
