From the category archives:

Newsletter Archives

Visit our NEW Website & Support our Continued Work!

November 21, 2024

We are thrilled to share our new website, LymphedemaAdvocacyGroup.org!  This new site will support our ongoing work to improve insurance coverage for lymphedema treatment and will continue to be developed with new resources in the coming year.  Together, We’ve Made History — And the Work Continues! Thanks to your support, the Lymphedema Treatment Act became law, […]

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National Commission for Lymphatic Disease virtual Town Hall

November 15, 2024

We invite you to attend the first ever National Commission for Lymphatic Disease (NCLD) virtual Town Hall taking place on Monday, November 18th, from 9:00am to 12:00pm Eastern time.  The NCLD is run by the National Institute of Health (NIH). The purpose of the Town Hall is to discuss the gaps and barriers in the […]

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Coverage Update re Pneumatic Compression Pumps

November 14, 2024

We are happy to announce that the Centers for Medicare & Medicaid Services (CMS) has retired the Local Coverage Determination (LCD L33829) for Pneumatic Compression Devices (PCDs) effective today, November 14, 2024. For dates of service on or after November 14, 2024, PCD clinical coverage criteria for Medicare beneficiaries will follow the National Coverage Determination […]

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New Lymphedema-Related Articles

November 7, 2024

Last year, the Lymphology Association of North America and the American Cancer Society hosted a lymphedema summit. The event brought together key experts and stakeholders from across North America to develop consensus statements on evaluating and treating lymphedema.  The 13 articles derived from this summit have recently been published in Medical Oncology (Volume 41). I […]

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Medicare Open Enrollment

November 5, 2024

If you are a Medicare beneficiary, you have until December 7th to choose your health plan for next year. If you are turning 65 in 2025, you may also be choosing a health plan, but your deadline varies. If you choose traditional/original Medicare, your coverage for lymphedema compression supplies can be seen here. If you […]

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Unable to Wear Standard Shoes? We Need Your Story!

October 28, 2024

One of our future goals is to gain coverage for prescription shoes for lymphedema patients who are unable to wear standard, commercially available footwear.  If you are a patient who can only wear custom-made shoes due to your lymphedema swelling, we need your stories and photos! Therapists can also submit on behalf of their patients. […]

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Coverage for Prescription Shoes & New Therapist Survey

October 16, 2024

We have two separate calls to action to share with you this month. First, if you are a patient who can only wear custom-made footwear because your lymphedema swelling prevents you from wearing any commercially available shoes, we need your stories and photos!  One of our future goals is to gain coverage for prescription shoes […]

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Home Health Coverage Update

September 28, 2024

Currently, when a Medicare patient is receiving Home Health services, their compression garments are billed separately through their Part B coverage. That will continue to be the case. Recently, the Centers for Medicare and Medicaid Services (CMS) issued a notice stating that lymphedema compression supplies would be subject to consolidated billing starting in 2025. This […]

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Resources, Denial Reporting Form, and More!

August 30, 2024

We have a variety of resources available through our website, like the Patient,Provider, and Supplier handouts seen below. We also have a one-pager specific to Medicare Advantage coverage, and other educational materials available through the Increasing Awareness page of our website.  If you are being denied coverage through any type of insurance plan, please use […]

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Medicare Supplier Directory Now Includes Compression!

August 1, 2024

The Centers for Medicare and Medicaid Services (CMS) has updated their Medicare Equipment and Suppliers online search tool to include lymphedema compression supplies!  This directory is far more comprehensive than the list of suppliers on our website, which was always intended to be just a temporary resource until the CMS database was updated.  Even if you […]

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UPDATE: Lymphedema Learning Session for Primary Care Providers!

July 30, 2024

I have some unfortunate news, but it comes with a silver lining. The August 1st lymphedema learning session for primary care providers that we told you about last week, hosted by the Keck School of Medicine at USC, will only be open to their internal faculty.  We know that there is a great need for […]

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Free Lymphedema Learning Session for Primary Care Providers!

July 21, 2024

On August 1st, the Keck School of Medicine at USC will host a FREE online learning session entitled “Lymphedema: What to Know as a Primary Care Provider.”  Please share this information with any healthcare providers who would benefit from this presentation. NOTE: The Keck School of Medicine has clarified that participants do not need to register […]

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UPDATE! Medicare Advantage Plan Coverage

June 28, 2024

As promised, we have been working with the Centers for Medicare and Medicaid Services (CMS) to ensure that Medicare Advantage (MA) plans provide the required coverage. We have received some very helpful and empowering information from CMS that we are pleased to share with you. If you have an MA plan or serve patients with […]

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Deadline Tomorrow for NIH Advocacy Opportunity!

June 27, 2024

Tomorrow (Friday, June 28th) is the deadline to submit feedback to the National Institute of Health’s recently launched National Commission on Lymphatic Diseases (NCLD). NCLD’s purpose is to gather input that serves to identify gaps and opportunities in lymphatic science, spur research, and evaluate the clinical, policy, and educational roadblocks to improving the prevention, diagnosis, […]

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NEW Patient, Provider & Supplier Handouts

June 15, 2024

We are so pleased to share with you these new handouts! As displayed below, there are separate versions for Patients, Providers, and Suppliers.  The front side of each has important information for all parties, while the back side is tailored to each audience. All three handouts aim to address the most commonly asked questions and […]

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Medicare Advantage Plan Coverage

May 31, 2024

If you or your patients have a Medicare Advantage plan and have been denied coverage, or found that there is no in-network supplier with your/their plan, we need to hear from you!  Please use our Denial Reporting Form to tell us  what obstacles you/they have encountered. Medicare Advantage plans are required by law to cover […]

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NEW Advocacy Opportunities!

May 27, 2024

Dear [CONTACT: first name], We have two opportunities to share with you. The first is an international study about the effects of climate on lymphedema symptoms. All patients are invited to participate in this short survey.  The second opportunity is related to the National Institute of Health’s recently launched National Commission on Lymphatic Diseases (NCLD).  NCLD’s […]

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FREE Recorded Webinars

May 17, 2024

We know that many people are still adjusting to the new insurance coverage for compression garments and supplies, and unsure about what information must be provided with each order. We are pleased to share with you two recorded webinars aimed at answering many of the most common questions. This first webinar is led by Linda […]

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Another Success Story

May 6, 2024

Last year, Martha, one of our advocates, contacted us for advice because her private insurance plan had discontinued covering custom compression garments. We were so delighted to get this from her last week: I have a happy update for you. After 15 months, Blue/Cross CareFirst (I am insured through my employer) has finally relented and […]

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Annual Report for 2023 – Outlook for 2024

April 23, 2024

We are pleased to share with you our 2023 Annual Report. Although the Lymphedema Advocacy Group is now in its 14th year of existence, this is the first time we have assembled a formal annual report. As such, the document does not merely highlight our work in 2023. It also looks back over all our […]

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