From the category archives:

Newsletter Archives

My Story

September 29, 2021

Today is the 15th birthday of my son Dylan, who was born with lymphedema, and his twin brother Devdan.  I can’t change the fact that Dylan has lymphedema, but I can make it easier for him to live with by ensuring insurance will cover his compression garments, and that’s why I started this group and […]

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How Does Your State Measure Up? Check Out Our New Map!

September 21, 2021

This week we are making a push to increase our cosponsor numbers. As you can see by our new map, we still have work to do in all but five states.  Please take the following two actions: Email Your Congressional Offices Call Your Congressional Offices If an office is already cosponsoring then they will receive […]

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Update on the Budget Reconciliation Package

September 16, 2021

The House has completed their legislative text of the Budget Reconciliation Package, and unfortunately, the Lymphedema Treatment Act was not included as we’d hoped. We will pursue any opportunity for the LTA to be added as the package moves through the Senate, as well as other concurrent opportunities to advance the bill. It is important […]

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Why We Are Urging You to Take Action This Week

September 9, 2021

The budget reconciliation bill you’ve likely heard about in the news is aiming to add hearing dental and vision to Medicare. Whether you agree or disagree with this, I think the one thing we can all agree on is that if improvements are being made to Medicare, the Lymphedema Treatment Act should be included too! […]

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Lymphedema Doesn’t Take Holidays

September 6, 2021

Lymphedema doesn’t discriminate, and it doesn’t take vacations. My 14-year-old son with lymphedema reminded me last week just how much time it takes out of his life, every day, to manage this condition. Having insurance coverage for compression garments would at least make that burden a little easier. Today, please take a few minutes to […]

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NEW ACTION ALERT – Today Could Be Pivotal!

September 2, 2021

Congress is currently deciding on the contents of the next big legislative package. Please call your members of Congress TODAY, and urge them to include the Lymphedema Treatment Act! A video message from Congresswoman Jan Schakowsky, our House bill sponsor, is below. As she says, “Fight hard, let’s do it!” We need a flood of […]

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We need these Senators to Cosponsor the LTA

August 26, 2021

This month, we have been scheduling virtual meetings with Senate offices who are not yet cosponsoring the Lymphedema Treatment Act. Even if you aren’t a constituent, you can still help to get them on board! Volume counts, so we need everyone to pitch in.  Last week we met with Senator Portman and Kaine’s offices. This […]

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Our Virtual Meetings with Congressional Offices are Underway!

August 19, 2021

Please complete this form if you are interested in attending a virtual meeting with one or more of your Congressional offices in support of the Lymphedema Treatment Act. Right now we are scheduling and meeting with offices who are not yet cosponsoring the LTA. However, there is a big opportunity on the horizon, and soon […]

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Special Call to Action for Rep Schakowsky Constituents (IL-9)

August 11, 2021

Your Representative, Jan Schakowsky, is the House sponsor of the Lymphedema Treatment Act, so we have something important to ask of you. The next big package that Congress takes up is expected to include Medicare improvements, and Representative Schakowsky will be fighting for our bill to be included! Competition will be fierce to get into […]

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Easy Way to Raise Awareness About the Need for the LTA

August 9, 2021

House members are already home in their districts, and Senate members will soon be headed home for the August recess as well. Now is a great time to try and get something published in your local paper. We have two new forms for submitting a letter to the editor. Both will submit to all publications […]

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56% of Congress is now Supporting the LTA!

August 3, 2021

297 Representatives and Senators are now supporting the Lymphedema Treatment Act, which is 56% of Congress! Congress will soon begin their long August recess, and not return to session until after Labor Day. Let’s make one more push this week to get non-cosponsoring members on board!  We still have over 120 members that cosponsored the bill […]

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291 House and Senate Cosponsors and Counting!

July 28, 2021

We now have a majority of the House supporting the Lymphedema Treatment Act, and are just two Senators away from having a super majority (two-thirds) level of support in the Senate!  The list below shows whether your Representative and two Senators are already supporting the bill. If they are, it will say “cosponsor” or “original […]

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New Analysis Supports Passage of the Lymphedema Treatment Act!

July 24, 2021

Our organization recently hired Avalere, a healthcare analytics firm that is a well-known and respected name on Capitol Hill. We asked them to estimate the potential savings that would result through enactment of the Lymphedema Treatment Act.  We have always maintained that the cost of covering compression garments is far less than the costs of […]

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Nearly 50% of the House is now Cosponsoring the LTA!

July 19, 2021

As of today, 213 of the 435 members of the House of Representatives have cosponsored the Lymphedema Treatment Act! Check the list below to see if your Representative is already supporting the bill. If he or she is, it will say “Cosponsor” or “Original Cosponsor” after their name. If it’s blank after your Representative’s name, […]

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Are Your Senators Cosponsoring the LTA Yet?

July 12, 2021

Please take a moment to contact any Senators not yet cosponsoring the LTA by emailing their offices, and also using the information below to leave a phone message. Congress is back from the July 4th recess this week, so now is a great time to reach out! Heather Ferguson Founder & Executive Director Lymphedema Advocacy […]

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Recognizing Lymphedema on National Chronic Disease Day

July 8, 2021

This Saturday, July 10th, is Chronic Disease Day. You can help us spread awareness about Lymphedema and the Lymphedema Treatment Act by submitting a letter to the editor. Just fill in your name and address and the editable template letter will send to your local newspaper(s).  Would you like to participate in a Zoom or […]

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Want to Participate in Virtual Meetings with Congressional Offices?

June 26, 2021

Until it is possible to resume our annual in-person Lymphedema Lobby Days on Capitol Hill we will be organizing virtual Zoom meetings with Congressional offices.  Additionally, for the present time, rather than setting aside one or two designated days for meetings, we will be scheduling them on an ongoing basis. Please complete this form if […]

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Letter from a Member of Congress to a Lymphedema Advocate

June 21, 2021

The below letter was received by Janyce, one of our advocates in Tennessee. Janyce has been routinely calling and emailing her members’ offices, and last week she got this wonderful personal letter from her Representative. I asked her if we could share it because it beautifully illustrates the difference your outreach makes. It also demonstrates […]

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We’ve Gained a New Cosponsor Every Day! Is Your House Member One?

June 14, 2021

Click on the map to view it larger Since our House bill was introduced 17 days ago we’ve gained 21 cosponsors — that’s more than one a day! Check to see if your Representative is one of our 168 House cosponsors on the list below. If he or she is not, please call and email […]

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Our Senate Bill is Approaching Super Majority Status!

June 7, 2021

Dear [CONTACT: first name], Our Senate bill now has 62 cosponsors, just five away from having a super majority level of support! Why does that matter? Because certain types of bills need only a simply majority to pass, but others require a super majority, which is two-thirds, so in the100 member Senate that’s 67. Please check […]

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