From the category archives:

Newsletter Archives

These 86 Congressional Districts Need a Patient Voice

February 20, 2021

A couple of weeks ago we asked you to share your lymphedema story, and now, only 86 out of 435 congressional districts lack the important patient perspective that these stories provide! The 86 districts without any submissions are below.  Stories from caregivers, family members, and clinicians are also welcome and equally important. Please consider sharing your […]

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#LTA2021 – Show Your Love for the LTA!

February 14, 2021

Imagine how much it would mean to you, or someone you care about, to know that your compression garments were covered by your insurance. No wondering how you will cover the cost. No waiting longer than you should to replace your current garments, which increases your risk for cellulitis infections and other complications. And imagine how much […]

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Your Story Matters

February 8, 2021

We can give members of Congress and their staff facts and statistics, but it’s patient stories that actually make them care. We need to touch hearts, not just minds. Your story shows them how their constituents’ lives are impacted, and there is nothing more powerful than that! As we prepare for our biggest and best year […]

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Spread Awareness With a Few Clicks

January 31, 2021

This Thursday, February 4th, is World Cancer Day. While lymphedema has numerous causes, approximately two-thirds of all cases in the United States are cancer-related. With a few clicks you can send a Letter to the Editor of every publication within a 50 mile radius of your location to raise awareness about the connection between cancer and […]

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The Day I Met Joe and Jill Biden

January 25, 2021

It would be quite fitting for President Biden to be the one to sign the Lymphedema Treatment Act into law, because he and Dr. Jill Biden are part of how this bill came to exist. In the fall 2008 I was asked to speak at an event. They were looking for a citizen that had experienced difficulties with […]

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It Takes A Village

January 18, 2021

Please take a moment to thank your members of Congress who cosponsored the Lymphedema Treatment Act (LTA) during the last Congress. A separate letter will automatically be sent to new members of Congress, or those in office last year who did not cosponsor the bill, encouraging them to do so when it is reintroduced this year. […]

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Legislative Outlook, Timeline & Upcoming Advocacy Opportunities

January 14, 2021

We are so incredibly grateful for your determination and heart, and are hopeful that you are, once again, all in for helping to get the Lymphedema Treatment Act signed into law!  For perspective purposes, the statistics on how difficult it is to get any bill passed into law speak for themselves. It takes an average of […]

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FREE Lymphedema Awareness & Education Materials

January 9, 2021

Before my son with lymphedema was born I’d never heard the word. Most people haven’t, until they or a loved on are diagnosed. But that is slowly changing, and each us can play an important role. On the Increasing Awareness page of our website you can find a variety of awareness and education materials available […]

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Happy New Year!

January 1, 2021

January 3rd, 2021 will mark the start of the 117th Congress. We came so close to seeing the Lymphedema Treatment Act signed into law this month and will continue to persevere until the bill is across the finish line! The Lymphedema Advocacy Group is an all-volunteer organization of patients, caregivers, healthcare professionals and industry partners. We are grateful […]

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Thank You for a Valiant Effort!

December 22, 2020

We are deeply disappointed to report that the Lymphedema Treatment Act was not included in the final legislative package for this year. Although this was not the outcome we had hoped and worked so hard for, we will push on next year. We are incredibly grateful that the bill was passed in the House of Representative […]

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Weekend Update

December 19, 2020

Congress is working through the weekend to finalize the last legislative package for this year. That means we need everyone to continue calling their members of Congress today and tomorrow. Most offices have after hours voice mail, so you can call any time! If you leave a voice mail make sure to include your address […]

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2020’s Final Legislative Package, and the LTA’s Inclusion, are Still in Limbo!

December 16, 2020

On Monday the final legislative package was expected to be decided by Tuesday, and here we are on Wednesday morning, with no package and no news yet on whether or not our bill will be included. So long as negotiations are ongoing we must continue to make our voices heard, and urge Congress to include the Lymphedema Treatment Act! Please use the […]

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Final Day to Advocate for Passage of the LTA This Year!

December 14, 2020

Congress is expected to unveil the final legislative package for this year tomorrow, so today is likely the final day to secure a spot in the package for the Lymphedema Treatment Act! As reported last Friday, we have confirmation from multiple sources that congressional leadership is considering the Lymphedema Treatment Act for the final legislative package of this year, but we aren’t in […]

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A Video Message From One of Our Youngest Advocates!

December 11, 2020

Not many 12-year-olds can say they’ve lobbied Congress and sat at Senator Chuck Schumer’s desk, but Emma can, and she’s got a message for you! Click HERE or on the image to the right to watch her 30-second video. BIG NEWS — we have confirmation from multiple sources that congressional leadership is considering the Lymphedema Treatment […]

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Will the LTA be signed into law this year?

December 7, 2020

This week we will likely learn if the Lymphedema Treatment Act has made it into the final legislative package of this year, and this Congress, and what you do or don’t do this week will be a factor in the outcome!  If your members of Congress are already cosponsoring the bill it’s even more important that […]

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A few phone calls could ensure you have insurance coverage for your compression garments, for good!

December 3, 2020

Imagine, no longer having to worry about whether or not you can afford your compression garments (or if your patients or loved one can), or if insurance will cover them… that’s what’s on the line right now! Your phone calls could mean the difference between the Lymphedema Treatment Act being signed into law this year or not!  If your members of Congress aren’t hearing […]

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We are the Most Supported Healthcare Bill – check out this Top 10 chart!

December 1, 2020

It’s no accident that the Lymphedema Treatment Act is the most supported healthcare bill in Congress! It’s the result of persistent and effective advocacy. Check out our new one-pager here or at the bottom of this message, which has recently been shared with all congressional offices. I think you’ll be impressed! Your support is what makes […]

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How COVID has Impacted Advocacy & Call to Action item #3

November 23, 2020

These two photos sum up how the pandemic has changed my advocacy for the LTA. Pre-COVID, I traveled to DC almost every month to meet with offices. Now, everything is online or over the phone, and for me that means one of my cats is usually keeping me company. The first photo was taken by a […]

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Congressional op-ed about the LTA!

November 21, 2020

We are closing in on nearly 2,000 email letters to Congress this week! If you haven’t sent yours yet, please click here to email your Representative and Senators – simply fill in your name and address, a template is provided! To coincide with our year-end push, we are thrilled that one of our House co-leads, Representative Buddy […]

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Can You Spare 5 Minutes to Help Pass the LTA? (Call to Action Item #2)

November 19, 2020

The next few weeks will determine if the LTA is passed this year, before the end of the current Congress, and that’s why your participation in every call to action is critically important!  Today, please take 5 minutes to make three phone calls to the offices of your two Senators and Representative in the House. The script […]

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