Newsletter Archives

Regardless of the outcome of today’s election, the current Congress continues through the end of the year. Meaning, the next two month are critically important to us! It’s no secret that Congress has gotten next to nothing passed the last six or so months, as they were deadlocked over the next COVID-19 relief package. In part […]

As a resource to the lymphedema community, this year anyone can attend the virtual exhibit hall at the National Lymphedema Network’s online conference!The Lymphedma Advocacy Group is one of dozens of exhibitors, so if you’ve ever want to chat with a member of our board this is a chance to do so. Other exhibitors include […]

In recognition of October’s Breast Cancer Awareness Month, the Lymphedema Advocacy Group issued the following press release about the importance of passing the Lymphedema Treatment Act. If you have any contacts in the media, please pass this along. We’ve also updated the template letter on our Letter to the Editor form to reflect this information, if […]

Five year ago today, which coincidentally fell on my twin sons’ 9th birthday, an article was published in the Washington Post about our family’s struggle to get Dylan properly diagnosed with congenital primary lymphedema, and my shock to learn that the compression garments he would need to wear for the rest of his life would not be covered by […]

In recent weeks we have gained three House cosponsors – Rep Horsford (NV), Rep Veasey (TX), and Rep Tiffany (WI). Every additional cosponsor helps increase our chances of getting into the next legislative package so let’s add to that list! Only 29 Senators and 58 House members have yet to cosponsor the Lymphedema Treatment Act. They are listed […]

Thank you to all those who sent a Letter to the Editor last week in support of the LTA! If your letter was published, please send us a link by replying to this email.  We have contacted the authors of all letters we are aware of that have been published to date, but it’s very […]

Stories from patients, family members, and clinicians are critically important. These first-hand accounts illustrate for members of Congress and their staff why passage of the Lymphedema Treatment Act is so important. For most patients, the pandemic has made it even more challenging to manage their lymphedema, and the need for insurance coverage for compression garments and supplies is […]

We are so grateful for the advocates who have responded to our calls to action in recent weeks – keep up the great work!  As you’ve probably seen in the news, deliberations over the next legislative package have begun. As our bill sponsor Senator Cantwell continues to push leadership to include the Lymphedema Treatment Act, it’s […]

Your calls and emails are working!  But we have to keep them coming, here’s why… The Senate majority party is expected to release a bare bones first draft for the next legislative package this week, after which lawmakers will negotiate to get addition provisions like the LTA added. There will be stiff competition, and Senator Cantwell, our […]