From the category archives:

Newsletter Archives

Chronic Disease Day

July 13, 2020

In recognition of Chronic Disease Day 2020, which took place last Friday, we called on Congress to include the Lymphedema Treatment Act in the next legislative package. The below announcement was sent to all 535 House and Senate Congressional offices.  Ensuring that patients have access to the medical supplies they need to manage their lymphedema at home […]

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These 89 Members of Congress Have Yet to Cosponsor the LTA!

June 29, 2020

Only 29 Senators and 60 House members have yet to cosponsor the Lymphedema Treatment Act! They are listed below. If you see any of your members on the list please contact them again.  Congress has been moving slow on putting together their next legislative package. First it was anticipated in May, then June, and now July. In the […]

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FREE Issue of Pathways Lymphedema Magazine & FREE Advocacy Event for Primary Lymphedema

June 27, 2020

We hope that you and yours are staying safe and healthy, and are pleased to share with you two FREE items of interest to the lymphedema community. The Canadian Lymphedema Framework is providing one-time complimentary online access to the Summer 2020 issue of Pathways lymphedema magazine, as a way of giving back to the lymphedema community during this COVID […]

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Tell-A-Friend Week

June 14, 2020

This year’s Lymphedema Awareness Month in March was largely overshadowed by the onset of the coronavirus pandemic. While it’s unfortunate that many planned lymphedema-related events had to be canceled or postponed, every month, and every day, is an opportunity to spread awareness. We are all finding new ways to connect in our current “separate but together” environment, and this week […]

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Virtually Connect with Other Lymphedema Patient Advocates in Your State

June 3, 2020

This has been a challenging and isolating period for many of us. If you would enjoy connecting with other lymphedema patient advocates in your area, we encourage you to join your state’s team if you have not already done so. There is no cost involved and no required time commitment. After completing this simple sign-up form you […]

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While Congress is in Recess…

May 26, 2020

Although Congress is in recess this week, there are still important ways in which you can advocate for passage of the Lymphedema Treatment Act! There are many lymphedema patients who are frustrated by the lack of insurance coverage for their compression supplies but don’t yet know about the LTA! If you use social media, please help us spread […]

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What is having COVID-19 like for Lymphedema Patients?

May 16, 2020

When we conducted our first survey two months ago the pandemic was just beginning. We’ve since seen that this virus can manifest in a wide range of symptoms, with a varying degrees of severity.  If you or someone you know with lymphedema has contracted COVID-19, please complete our new survey: What is having COVID-19 like […]

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House Vote Possible This Week – Has Your Rep Heard From You?

May 11, 2020

The House is expected to return this week to vote on the next legislative package – please contact your Representative again about including the LTA!  Calling is the most effective and all information is below.  You can also use our new Email and Twitter Action Alerts. Simply fill in your name and contact information.  Constituent contact is vital! Heather Ferguson Founder & […]

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The Senate is Back – Have They Heard from You?

May 4, 2020

The Senate is back in session and needs to hear from you! If you have not called and emailed your Senators recently please do so this week. Calling is the most effective and all information is below.  You can also use our new Email and Twitter Action Alerts. Simply fill in your name and contact information.  Constituent contact is so important! […]

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Please Call Congress Today!

April 28, 2020

Congressional leadership has given member offices a deadline of the end of this week for submission of priorities for the next legislative package! That’s not to say that anything will be final after this week, but offices need to hear from us now! Please call your members of Congress using the information below and ask […]

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New Action Alerts – EMAIL and/or TWEET Congress!

April 24, 2020

Congress is beginning to work on the next COVID-19 response package, and it is expected to have a broader focus than previous coronavirus-related legislation.  Please contact your members of Congress and ask them to include the Lymphedema Treatment Act! Lymphedema patients need compression to stay healthy, and under current circumstances preventative care must be an even higher priority! More […]

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History of the LTA

April 17, 2020

Ever wonder what the history of the Lymphedema Treatment Act is?  What follows is a brief overview told from the perspective of my family. I hope you will be inspired by how far we have come!  Every day we get closer to closing the insurance coverage gap for compression supplies. We are still collecting new/updated […]

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Update on COVID-19 Survey & Sharing Your (new) Lymphedema Story!

April 4, 2020

Thank you to all those who participated in our recent survey, What is the Impact of COVID-19 on Lymphedema Patients?  The responses made it clear that the impact this crisis is having on patients’ ability to manage their lymphedema is only beginning to be felt. Many patients are already seeing a worsening of their condition due loss […]

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Tweet for the LTA!

March 30, 2020

We are continuing to keep in close contact with our bill sponsors and other key congressional offices, vigilantly watching for any possible opportunity to include the LTA in one of the COVID-19 response bills or other swiftly moving legislation destined to become law. In the mean time, we are preparing ways to mobilize our advocates to […]

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Assessing the Impact of COVID-19 on Lymphedema Patients

March 21, 2020

It’s more important than ever to enact preventative healthcare bills like the Lymphedema Treatment Act, which enable patients to manage their condition at home and reduce the incidence of complications and lymphedema-related hospitalizations. As we continue to stress this to Congress, we would value hearing how COVID-19 is already impacting your life and what concerns you […]

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Coronavirus and the LTA

March 16, 2020

Many aspects of our lives have been impacted by the coronavirus pandemic, however, these unfortunate circumstances may also bring with them a new opportunity to get the LTA signed into law. With this public health crisis also comes a more urgent need to pass bills like ours! More than 10 years of data* has overwhelmingly demonstrated that […]

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Lobby Days Recap – over 160 Congressional Meetings in One Day!

March 9, 2020

Last Monday, nearly 80 people from 30 states took part in our 2020 Lymphedema Lobby Days We met with 93 Senate offices, 70 House offices, and dropped off information and constituent letters to about 2 dozen more offices. An impressive day’s work! Since 80% of the meetings were with offices already cosponsoring, our main ask was that the Lymphedema […]

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A Week of Action for the LTA!

March 3, 2020

  Yesterday, advocates from around the country were on Capitol Hill meeting with congressional offices! For all those who could not travel to D.C. for Lymphedema Lobby Days, here are 5 ways can make a difference from home this week: Action #1: Send a postcard to your Senators and Representative –the addresses are provided at these links. Postcards […]

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The Difference You Make

February 24, 2020

Next Monday, advocates from around the country will be on Capitol Hill to take part in our annual Lymphedema Lobby Days. We will be urging the Senate to pass the bill, just as the House did in December, so that the LTA can be signed into law this year!  We will be delivering over 1,000 pages […]

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Get Your Educational and Awareness Materials for Lymphedema Awareness Month!

February 22, 2020

All of our educational and awareness materials are available for order or FREE download on our website.  These materials are perfect for sharing with doctors, therapists, support groups, garment fitters and suppliers, friends, family and colleagues. Please place orders this weekend, to ensure they arrive in time for Lymphedema Awareness Month in March.  Due to […]

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