From the category archives:

Newsletter Archives

Final Day to Register for Lymphedema Lobby Days 2020!

February 16, 2020

Today is the final day to register for Lymphedema Lobby Days! This free event is open to advocates of all ages, no experience required! Advocacy training will be provided during the dinner reception on Sunday, March 1st, and on Monday, March 2nd we will meet with congressional offices on Capitol Hill. Links to register, book a hotel room if needed, and all details are on […]

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Show Your LOVE for the LTA on Valentine’s Day!

February 14, 2020

Advocates around the country are showing their LOVE for the Lymphedema Treatment Act!   Valentine’s Day is at the heart of our annual fundraiser. Today, advocates around the country will be showing their love for the LTA by walking in their own communities. And in a few weeks, they will be walking again, but in the […]

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83% of Congress is now Cosponsoring the LTA!

February 11, 2020

When we first began advocating for the LTA scarcely any members of Congress or their staff had even heard of lymphedema. Today, it is the most supported healthcare bill in Congress! Only 29 Senators and 60 House members have yet to cosponsor the bill. They are listed below. If you see any of your members on the […]

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Meet Bill – survivor, lymphedema patient, advocate!

February 8, 2020

My name is Bill. I am a secondary Lymphedema patient due to Synovial Sarcoma as a much younger man. A business owner, dog lover, and sports nut. However, my real passion is advocating for the LTA!  Like many others – I was drawn to this cause due to frustrations with this disease and the encouraging words […]

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The 30 Senators NOT Cosponsoring the LTA Yet!

February 3, 2020

Please contact the below 30 Senators (again) and ask them to cosponsor the LTA! The more we have the greater our chances of getting the bill signed into law this year.  Additionally, if you live in one of the 10 states marked in red below, we need you! These states do not yet have someone attending our […]

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Show Your Love for the LTA in February!

February 1, 2020

Show Your Love for the LTA – Join the Walk or Donate! 2019 was a historic year for the lymphedema community! Passage of the LTA in the House was a huge milestone, and now we need to do everything possible to get the bill through the Senate this year, before the current Congress ends in December.  While the […]

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Final Day for Hotel Room Discount at Lymphedema Lobby Days 2020

January 29, 2020

Today is the final day to reserve discounted hotels rooms for Lymphedema Lobby Days 2020! Registration will remain open through February 16th, but today is the final day to reserve a discounted hotel room. Links to register, book a hotel room if needed, and all details are on our Lymphedema Lobby Days page. This event is always free and advocates of […]

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Send Us Your Lymphedema Story to Take to DC!

January 25, 2020

We hope you can join us in DC for Lymphedema Lobby Days, but if you can’t, please send us your Lymphedema Story and we will hand deliver it to your members of Congress!  Personal letters from constituents are powerful, so if you are unable to attend, please consider sharing your Lymphedema Story. To ensure that we have time to print […]

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Countdown to Lymphedema Lobby Days 2020

January 20, 2020

There are just 10 days left to reserve discounted hotels rooms for Lymphedema Lobby Days 2020, and 20 days left to register.  Discounted rooms are available until January 29th or until sold out, and registration closes on February 16th. Don’t delay – links to register, book your hotel room if you need one, and details are on our […]

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Senate Press Release on House Passage of the LTA

January 13, 2020

We are pleased to share with you this press release from Maria Cantwell’s office, our Senate sponsor, about House passage of the LTA. If you did not have a chance to contact your Senators last week please do so this week using the information below.  Registration for Lymphedema Lobby Days 2020, to be held March 1st and 2nd […]

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Registration is now OPEN for Lymphedema Lobby Days 2020!

January 10, 2020

Register now for our annual Lymphedema Lobby Days! With the LTA passed in the House of Representatives, much of our focus has shifted to the Senate.  Our goal is to meet with all 100 Senate offices!  Regardless of whether they are cosponsoring or not.  To meet that goal, we ideally need advocates from every state.    To register and for further […]

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Contact Your Senators!

January 7, 2020

Make 2020 the year the LTA is signed into law!  Please take a moment to contact each of your Senators again, whether they have already cosponsored the bill or not. Phone numbers and call scripts are below. Congress will be coming back in session this week. Registration will be opening soon for Lymphedema Lobby Days 2020 in Washington, DC! A required orientation […]

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Thank You & Happy New Year!

December 30, 2019

2019 was an Historic Year for the Lymphedema Community! Passage of the LTA in the House of Representatives was a huge milestone. We are now well positioned to pass the LTA during the 116th Congress, which does not end until December of 2020! We are so grateful for your advocacy – nothing can underscore the importance of constituent […]

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Happy Holidays & Save the Date for Lymphedema Lobby Days 2020!

December 23, 2019

The House and Senate are now in recess for the holiday, and will return in early January. At that time we look forward to continuing our work and getting the LTA fully across the finish line next year! Mark your calendars – our 2020 Lymphedema Lobby Days in Washington, DC will be held March 1st and […]

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Thank House Members, Ask Senators to Cosponsor!

December 16, 2019

Like me, you may still be glowing from the excitement of our bill having been passed in the House! But it’s time to get back to work. Let’s see what more we can get done before Congress breaks for recess at the end of this week. Please send an email to your Representative, to express […]

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Our Bill was Passed in the House of Representatives!

December 12, 2019

Today, we made history in the lymphedema world – the LymphedemaTreatment Act was passed in the House of Representatives!  We are now one giant leap closer to passing this bill into law and making sure patients have insurance coverage for their vital compression supplies.  I would like to take this opportunity to express my deep gratitude to the many people who […]

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Press Release Regarding the LTA’s Inclusion in House Vote This Week

December 10, 2019

  The Lymphedema Treatment Act will be included in House bill H.R. 3, the Lower Drug Costs Now Act, which is expected be voted on this week! The full House announcement about H.R. 3 can be read here, and a press release from Congresswoman Schakowsky’s office, our House lead sponsor, can be read here and is copied below. H.R. 3 is expected to pass the House […]

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BREAKING NEWS: House Vote Next Week will include the LTA!

December 6, 2019

  The Lymphedema Treatment Act will be included in an upcoming House vote! Next week, the House will be voting on H.R. 3, the Lower Drug Costs Now Act. In addition to lowering drug costs, this bill proposes reinvesting the savings that will be generated in a number of ways, including adding “coverage of treatment supplies for Medicare beneficiaries suffering from lymphedema.”  The […]

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Support Patient Access to Compression Supplies on Giving Tuesday!

December 3, 2019

  Our work to pass the Lymphedema Treatment Act and ensure that all patients have insurance coverage for their vital compression supplies would not be possible without your support! Your contributions provide the critical resources that enable us to not only advocate on behalf of patients, but also empower and assist all those who care about this issue to take action and make their voices heard. Donations of any […]

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Thank You to our Advocates!

November 25, 2019

On behalf of everyone here at the Lymphedema Advocacy Group, we are so grateful for your advocacy in support of the Lymphedema Treatment Act! As you gather with friends and family this week, if you wish to take the opportunity to spread awareness we have two informational pieces (pictured below) that are perfect for sharing. Each can be […]

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