Newsletter Archives

Participants in our Lymphedema Lobby Days, May 5th-7th, will have the chance to win one of three compression garments, thanks to the generosity of our Industry Partners – Jobst, L&R USA, and mediUSA! Each prize will be transferable, so if a family member or clinician wins they can gift it to the patient of their choice. […]

Today, the Lymphedema Treatment Act was reintroduced in the House by our Lead Sponsor, Representative Jan Shakowsky (IL-9), and Co-leads Buddy Carter (GA-1), Earl Blumenauer (OR-3), and Mike Kelly (PA-16)! The press release can be read here. In a huge show of support, 92 additional House members also joined as Original Cosponsors, meaning that they were […]

We hope you can join us for our 2019 Lymphedema Lobby Days, May 5th-7th! There is less than two weeks left to reserve discounted hotel rooms, and more than half of the rooms in our block are already sold out. Complete information and links to register and book your room are on the Lobby Days […]

  Registration is now open for our 8th annual Lymphedema Lobby Days on Capitol Hill, May 5th-7th! Complete information, including the links to register and book your hotel room, is on the Lymphedema Lobby Days page of our website. The registration deadline is Sunday, April 14th, and cutoff date for discounted hotel rooms is Thursday, […]

We are thrilled to announce that our 8th annual Lymphedema Lobby Days on Capitol Hill will be held May 5th-7th!   Registration will open by March 16th, and you will receive another email on or before that day with detailed information. If you have not attended in the past you can read what other participants […]

It is remarkable that we already have 40 Senate cosponsors, just a little more than two weeks after the bill was reintroduced in the Senate! A complete list of who has and hasn’t signed on is here. Please use the script and phone numbers provided here to call those not yet cosponsoring (this has the […]

  The LTA was reintroduced in the Senate last Thursday and 36 Senators are already supporting the bill! Now we need your help getting the rest!   A call script and phone numbers are below my signature. Talking to a live person is best, but many offices do have after hours voice mail. You can […]

  All of our educational and awareness materials are available for order or free download on our website. These materials are perfect for sharing with doctors, therapists, support groups, garment fitters and suppliers, friends, family and colleagues. Please place orders this week, to ensure they arrive in time for Lymphedema Awareness Month in March. Due […]

  Over the last few years we have collected over 500 patient and caregiver stories through our My Lymphedema Story campaign, but we still need more! These stories are shared with members of Congress and their staff. They play a vital role in helping them to understand the challenges their constituents with lymphedema face, and […]