From the category archives:

Newsletter Archives

18 More Days to Help Shape Compression Coverage Across the Nation!

August 12, 2023

Great news – the comments that have been submitted thus far to the Centers for Medicare and Medicare Services can now be read HERE! Remember, even if you are not a Medicare beneficiary yet, Medicare coverage sets the standard that most other private and public policies follow, so these rules will affect all patients. If […]

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3 Weeks Left to Submit Your Feedback on the Proposed Coverage Rules for Compression Supplies!

August 8, 2023

You have three more weeks to help shape the future of lymphedema compression coverage in the United States!  CLICK HERE to submit your comments on the Lymphedema Treatment Act rules. Comments must be submitted by August 29th. If needed, step-by-step instructions on how to use the submission form are available HERE.  In addition, the US Compression […]

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Medicare Changes Coverage Rules for Lymphedema Pumps, for the Better!

July 31, 2023

Exciting news – while not related to implementation of the Lymphedema Treatment Act, Medicare has just made another change that will also be beneficial to many lymphedema patients. They are removing the requirement that a patient must fail to improve during four weeks of “conservative” therapy in order to qualify for coverage of a pneumatic […]

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Link to Submit Your Comments on the LTA Rules!

July 22, 2023

It’s time to make your voice heard! The form to submit your comments on the Lymphedema Treatment Act rules can be accessed HERE, and if needed, step-by-step instructions on how to use the form can be accessed HERE. We had originally planned to use our advocacy tools to create our own submission form, in an […]

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Recording of 7/13 Webinar & Other Resources

July 15, 2023

A recording of our webinar held on Thursday night, 7/13, is now available. The link to it and a variety of other resources to help you prepare your comments on the proposed coverage plan for lymphedema compression supplies are below. We anticipate that our form for submitting your comments to the Center for Medicare and […]

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Recording of 7/6 Webinar, Register for Tonight’s Webinar

July 13, 2023

Tonight at 8:00pm eastern, we will be hosting our second webinar regarding the CMS draft rules to provide talking points and guidance on submitting your public comments. Please register here.  A recording of last week’s webinar about the content of the draft rules can be viewed here. A recording of tonight’s webinar will also be […]

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Have you read the draft rules for the LTA?

July 8, 2023

If you haven’t already done so, we encourage you to read the draft rules for the LTA this weekend. As a reminder, the LTA rules are part of a larger package of rules, so we have created this separate document with just the pages containing the LTA-related rules.  Answers to many of the questions we […]

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Draft Rules for the LTA have been Released!

July 1, 2023

The draft rules for the LTA have been released! As a reminder, the LTA rules are part of a larger package of rules, so we have created a separate document with just the pages containing the LTA rules. We are still analyzing them, so more details are forthcoming, but we are very pleased with the […]

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Resources Recap

June 24, 2023

The draft rules for the LTA have not been released yet, so the 60-day Public Comment Period has not yet begun. We will alert you as soon as that changes.  In the meantime, you can prepare by watching our Public Comment Period Video Tutorial.  We suggest you also review this Commentator’s Checklist, which is full […]

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Recorded Webinar to prep for the Public Comment Period

June 19, 2023

If you were unable to join us for one of our two live sessions last week, or if you know someone who would be interested in receiving this information, we now have a recorded tutorial to prepare advocates for participating in the upcoming Public Comment Period for the LTA rules. Click Here to View the […]

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Experiencing coverage problems now?

June 14, 2023

As a reminder, the Lymphedema Treatment Act became law in December 2022, but does not go into effect until January 1, 2024. We’ve heard from a number of people recently concerned about coverage problems they are currently experiencing, and want to reassure you that these are not related to the LTA. For many years now […]

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Videos and Photos from our DC Celebration in May

June 10, 2023

We are so pleased to be able to share with you the photos and videos taken during last month’s DC event to celebrate passage of the Lymphedema Treatment Act!  There’s a lot to look at, so if you only choose one, make sure to watch the video of the Congressional Awards Ceremony. Hearing the members […]

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Photos from 13 Years of Advocating for the LTA

June 3, 2023

We are still compiling the photos and videos from our DC Celebration that took place on May 22nd and 23rd and look forward to sharing those with you in the future.  In the mean time, we are pleased to share this photo montage containing hundreds of images spanning nearly 13 years of advocacy, from the […]

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REGISTER NOW: Zoom Webinar re the Public Comment Period for the LTA

May 26, 2023

We are offering two Zoom Webinars to prepare our advocates to participate in the upcoming 60-day Public Comment Period for the LTA rules, which is anticipated to begin in June.  Click Here to Register for Sunday, June 11th, 8:00-9:00pm Eastern Click Here to Register for Thursday, June 15th, 8:00-9:00pm Eastern What is a Public Comment […]

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ACTION ALERT: Email Congress This Week

May 23, 2023

Today, more than 100 lymphedema advocates from around the country are on Capitol Hill to thank lawmakers for passing the Lymphedema Treatment Act, and to ask them to support any future legislation and research funding that will benefit lymphedema patients.  If you are not in DC with us today, please send this email to your […]

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DEADLINE TOMORROW – Register for our DC Celebration

May 6, 2023

If you are not yet registered, tomorrow (Sunday, May 7th) is the final day to signup to attend our 2023 DC Celebration taking place on May 22nd and 23rd! Tomorrow is also the last day to book a hotel room in our group block. The reception on Monday, May 22nd will be a time to […]

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Final Week to Register for our DC Celebration on May 22nd and 23rd!

April 30, 2023

If you haven’t yet, this is the final week to register for our 2023 DC Celebrationtaking place on May 22nd and 23rd! The registration deadline is Sunday, May 7th. That is also the last day to book a hotel room in our group block. However, the discounted hotel rooms are nearly sold out, so don’t […]

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Discounted Hotel Rooms for our DC Celebration in May are Almost Sold Out

April 23, 2023

Our 2023 DC Celebration is fast approaching and you won’t want to miss this once in a lifetime opportunity to commemorate this landmark achievement for the lymphedema community!  The reception on Monday, May 22nd will be a time to celebrate with fellow advocates. You will also learn more about how and why you should participate […]

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Three Weeks Left to Register for our DC Celebration in May

April 16, 2023

The deadline to register for our 2023 DC Celebration is just three weeks away. The last day to signup to attend is Sunday, May 7th. Hotel rooms can be reserved in our discounted room block until Monday, May 1st, or until sold out.  Details are below my signature and can also be viewed online on […]

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Are you Registered for our DC Celebration on May 22nd & 23rd?

April 8, 2023

We are looking forward to seeing everyone who has already registered. If you haven’t yet, we hope you can join us as well!  Details about the event are below my signature and can also be viewed online on our 2023 DC Celebration page. Please follow the links to register for the event and book your […]

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