From the category archives:

Newsletter Archives

Registration is OPEN for our DC Celebration, May 22nd & 23rd!

April 1, 2023

All advocates who supported passage of the Lymphedema Treatment Act are invited to join us in Washington D.C. on May 22nd and 23rd to celebrate this tremendous achievement! Details about the event are below my signature and can also be viewed online on our 2023 DC Celebration page. Please follow the links to register for […]

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May 22nd and 23rd DC Event to Celebrate Passage of the LTA!

March 21, 2023

It is now official, our DC event to celebrate passage of the Lymphedema Treatment Act will be held on Monday, May 22nd and Tuesday, May 23rd!  Registration will open on Saturday, April 1st. We have secured our hotel room block and are close to having the other necessary reservations made. We encourage you to book […]

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Things might seem quiet with the LTA, but…

March 13, 2023

There is a tremendous amount of important work going on behind the scenes right now! Stakeholder groups are in the process of having “listening sessions” with the Centers for Medicare and Medicaid Services (CMS). This is an opportunity for groups to educate CMS officials and make recommendations about the rules related to the coverage for […]

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New Flyer for Spreading Awareness – FREE Download

March 1, 2023

Happy Lymphedema Awareness Month! To help you spread awareness about lymphedema and the upcoming improvements to insurance coverage thanks to passage of the Lymphedema Treatment Act, we have an updated flyer (seen below) that you can download for free.  If you plan to print the flyer at home or work, use this printer-friendly version, which […]

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Save the Date to Celebrate Passage of the LTA!

February 22, 2023

We are tentatively planning to celebrate passage of the Lymphedema Treatment Act with an event on Monday, May 22nd in Washington, DC!  Please do not make any arrangements or purchase airplane tickets at this time, as we have yet to secure our event and hotel space, but we are working on that now. Because there […]

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Public Comment Period for LTA’s Implementation

February 16, 2023

Later this year there will be a Public Comment Period for the Lymphedema Treatment Act. You are probably wondering, what is a Public Comment Period, why is it important, and can I participate? Whenever there is new coverage or significant changes to existing coverage, the Centers for Medicare and Medicaid Services (CMS) is required to […]

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Upcoming Advocacy Opportunities

February 2, 2023

ProPublica is working on an investigative news story about health insurance denials and looking for input from patients, providers and others! If you are willing to share your own tale of insurance denials, this is another way you can help shed light on the barriers lymphedema patients face trying to access proper care! Click here […]

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Has Your Contact Info Changed?

January 27, 2023

Please take a moment to check this form and ensure that your contact information is up to date.  Although the LTA has passed, our work is not done. There may be times this year and beyond where your advocacy is needed, and it’s important that we have your current information so we know what congressional […]

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LTA mentioned in the New York Times!

January 24, 2023

Over the weekend, our bill received a mention in this New York Times article! Also, answers to two new questions have been added to the end of our Frequently Asked Questions document. If you haven’t yet, we encourage you to send this news release about the Lymphedema Treatment Act’s passage to your local media outlets. […]

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Recognizing our Supporters

January 17, 2023

Today we would like to thank the many individuals and organizations who support our work: the advocates like you, dozens of stakeholder groups, our Annual Sponsors the National Lymphedema Network and ImpediMed, and our Industry Partners – L&R USA, Jobst/Essity, and mediUSA – who share their thoughts below.  “L&R is proud to have been a […]

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LTA News Release for Sharing with Your Local Media

January 14, 2023

A news release about the Lymphedema Treatment Act’s passage is available here.  We encourage you to send the release to your local media outlets. You should include a few sentences about how the law will impact you and what you did to help it pass. If possible, include a photo of yourself, and if applicable, […]

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LTA Frequently Asked Questions Document Now Available!

January 10, 2023

Our much-anticipated Frequently Asked Questions Document is now available! I encourage you to read the entire document, even if you are mainly interested in only a few of the questions, as some answers are better understood in the context of the whole.  We will do our best to update the FAQ document periodically, so if […]

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Do You Have a Question About Next Steps for the LTA?

January 2, 2023

Below is the compiled list of all questions submitted thus far. If you have a question that you do not see on this list, please send it to us by the end of the week by responding to this email. Due to the large number of inquiries, we are still working on the Frequently Asked […]

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Thank You for your Advocacy in 2022!

December 30, 2022

Never has it been more clear how much can be accomplished when we come together, raise our collective voices, and don’t give up! Passage of the Lymphedema Treatment Act marks a monumental milestone in ensuring that patients will have better access to care, but our work is not done.  If you haven’t yet, please take […]

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We did it! The LTA has been passed by Congress!!!

December 23, 2022

Today, the House passed the year-end omnibus legislative package that cleared the Senate yesterday and included the Lymphedema Treatment Act, which means our bill has officially been passed by Congress! President Biden is expected to sign the bill as soon as it reaches his desk, so in a very short time the Lymphedema Treatment Act […]

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Final Vote is Tomorrow/Friday Morning!

December 23, 2022

Today, the Senate passed the year-end omnibus legislative package, which contains the Lymphedema Treatment Act, by a vote of 68-29, with three Senators not voting. Tomorrow/Friday morning, the House will convene at 9:00am Eastern to vote on the package.  Although our bill was already passed in the House as a stand-alone measure, because it passed […]

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Tell your Members to vote YES on this week’s final LTA vote!!

December 21, 2022

Voting could start on the year-end package that includes the Lymphedema Treatment Act as early as tomorrow/Thursday! If you haven’t called your members of Congress yet and urged them to vote YES, please do so today! This map shows the calls that were logged through our Congressional Call Action Alert yesterday/Tuesday.  We need everyone to […]

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Action Alert: Tell your Members to vote YES on this week’s final LTA vote!!

December 20, 2022

As reported earlier today, the Lymphedema Treatment Act has been included in the year-end legislative package! Both chambers will be voting on this package later this week.  PLEASE call your Representative and both Senators today, thank them for the LTA being included, and urge them to vote YES! Although our bill has already cleared the […]

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LTA Included in Year-End Legislative Package!

December 20, 2022

We did it — the Lymphedema Treatment Act has been included in the year-end legislative package!!!!  The contents of the package were finally released overnight and will be voted on by both chambers this week.  More details are forthcoming, so stay tuned! Thank you to everyone who has been calling their Senators and working tirelessly […]

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Still Waiting for News on Senate Bill

December 18, 2022

A huge thank-you to everyone who has made their phone calls! If you haven’t yet, it’s not too late. And if you tried but had trouble getting through or couldn’t leave a message, try going through the capitol switchboard – details on that are below. The latest news out of Capitol Hill is that Congress […]

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