From the category archives:

Newsletter Archives

ACTION ALERT: Congressional Briefing for the LTA on 10/24

October 12, 2022

On Monday, October 24th, a briefing on the Lymphedema Treatment Act will be held for congressional staff. This is an opportunity for offices to learn more about our progress in advancing the LTA, its importance, and urge them to help us get the bill across the finish line!  Please send this invitation to your congressional […]

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October Advocate Spotlight

October 7, 2022

In this month’s Advocate Spotlight below, Candace Bridegwater – a two-time breast cancer thriver and long-time advocate for the LTA – reflects on her many years of experience and shares tips on how to be an effective advocate.  We hope that reading her story inspires you to complete this month’s advocacy actions.  Even if your […]

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October Advocacy Opportunities

October 1, 2022

October is Breast Cancer Awareness Month, and with that comes the opportunity to increase awareness about lymphedema from all causes and the importance of passing the Lymphedema Treatment Act!  We have four actions for this month: EMAIL Your Members of Congress (template letter provided) CALL Your Members of Congress (script and numbers provided) WRITE a Letter […]

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The Congressional Budget Office has scored the Lymphedema Treatment Act!

September 26, 2022

We are thrilled to announce that the Lymphedema Treatment Act has received a score from the Congressional Budget Office. A score is necessary for the bill to be brought to a vote in the full House and in the Senate, so this is another big step forward!  Also, we just gained another Senate cosponsor (Majority […]

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FREE Recorded Webinar on How to Get Local Media Attention!

September 23, 2022

If you are interested in raising awareness in your area, I encourage you to watch this excellent recorded webinar, produced by our friends at the EveryLife Foundation: Share Your Story Through Local Media. They also have a local media toolkit. I attended this webinar when it was presented live and found it very informative. Although […]

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The House is Back in Session — Send Them a Message Today!

September 15, 2022

Last week the Senate returned from their long recess, and this week the House returns.Please take one minute to email your Representative today!  Even if your Representative is already cosponsoring the bill, please reach out and urge him or her to help get the bill passed this year. An editable pre-written message is provided to […]

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The Senate is Back in Session — Send Them a Message Today!

September 7, 2022

Today, the Senate returns from their long recess. Please take one minute to email your two Senators! An editable pre-written message is provided. Even if both of your Senators are already cosponsoring the bill, please reach out and urge them to help get the bill passed this year. Thank you for your advocacy!  Heather Ferguson […]

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Advocate Spotlight!

August 31, 2022

I hope you will enjoy reading the Advocate Spotlight below, in which Jane DeChambeau, one of our long-time team members, talks about her lymphedema journey, why she got involved, and what advice she has for other advocates. We also hope that reading her story inspires you to share yours, if you haven’t yet. Stories from […]

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Last Call to Sign up to Attend a Virtual Meeting with your Senator’s Office

August 24, 2022

Please complete this Interest Form by the end of the week if you would like to attend a virtual Zoom meeting with your Senator’s office.  Note that we have no one signed up yet from SD or WY! Our thanks to those from other states who have already signed up. Next week we will begin […]

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How You Can Talk to Your Members of Congress Face-to-Face

August 22, 2022

There are two ways to talk to your members of Congress face-to-face, right in your own community: Option #1 – at a Town Hall or other public event; Option #2 – by scheduling a District Meeting. Below, you can read a first-hand account from another advocate about what it was like speaking to her Congressman. […]

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Do You Want to Attend a Virtual Meeting with Your Senator’s Office?

August 18, 2022

We will be working to schedule virtual Zoom meetings with the following Senate offices after Labor Day. If you are a constituent and interested in participating, please complete this simple Interest Form.  KY-Senate: Rand Paul SD-Senate: John Thune TN-Senate: Bill Hagerty TX-Senate: Ted Cruz UT-Senate: Mike Lee and Mitt Romney WI-Senate: Ron Johnson WV-Senate: Joe Manchin WY-Senate: Cynthia Lummis and John Barrasso Completing […]

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You Can Meet With Members While They Are Home During Recess

August 16, 2022

One of our advocates got to talk to her Senator at a recent event! Here is what she had to say: In my town of Meadville, I had the privilege of listening to Pennsylvania’s US Senator Bob Casey speak at a gathering. I also had the extreme privilege of personally thanking him for supporting the […]

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NEW Article about the LTA and the Necessity of Compression Garments

August 10, 2022

We are pleased to share with you an article authored by our group entitled The Necessity of Compression Garments in Managing Lymphedema, which was recently published in the Journal of Cancer Rehabilitation. The article discusses the significance of compression garments in treating lymphedema from all causes, not just cancer, as well as the importance of […]

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5-minute Video of House Members Speaking in Support of the LTA!

August 5, 2022

It was thrilling to see how many bipartisan members spoke in support of the Lymphedema Treatment Act when it was unanimously passed out of the House Energy & Commerce Committee on July 13th! This 5-minute video has excerpts of their statements:  Over the next month, there will be many opportunities to speak directly to members […]

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Take Advantage of Town Halls in August!

August 1, 2022

Congress will be in recess for the majority of August and into early September, which means for the next five weeks opportunities to speak directly to your members of Congress at Town Halls and similar events will abound, especially this year! Every House member and one-third of the Senate is up for reelection this fall, […]

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Help Spread Awareness in Your Area

July 29, 2022

Last week, I was thrilled to join one of our IL Team Members in a radio interview about the Lymphedema Treatment Act with one of his local stations! Word of mouth and local coverage like this is so important in spreading awareness about lymphedema and our bill. Here are some easy ways you can do […]

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Invitation to Join Your State’s Advocacy Team

July 27, 2022

Now that the Lymphedema Treatment Act has been passed out of committee, advocate engagement will be even more crucial. If we don’t get the bill signed into law by the end of this year we will have to start over again in the new Congress next January.  I’d like to invite you to join your […]

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Impact of Patient Stories Highlighted During Committee Vote

July 25, 2022

During the recent committee vote on the Lymphedema Treatment Act, many of the members who spoke noted how moved they were by hearing patient stories. The day before the vote we sent each member of the committee all the patient stories we had collected from their district, and will do the same before the full […]

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What’s Next, Now That the LTA has been Advanced out of Committee

July 18, 2022

We are thrilled to share these press releases from our House Lead Sponsor and Co-Lead Sponsor: Schakowsky Applauds Advancement of the Lymphedema Treatment Act Carter: “Help is on the way” for Lymphedema patients Now that the House Energy & Commerce Committee has advanced our bill out of committee the next step will be a full […]

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We Did It! The LTA has been Advanced out of Committee!

July 14, 2022

This afternoon, the Lymphedema Treatment Act was advanced out of the House Energy & Commerce Committee by a unanimous voice vote!  While more work remains, this is a huge step forward for our bill! The next step is a full House vote, then on to the Senate. Only Representatives serving on the House Energy & Commerce […]

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