From the category archives:

Newsletter Archives

March Action Item: Send Your Representative a Personal Note

March 2, 2022

In March, during Lymphedema Awareness Month, we are asking you to do something very personal – send a hand written note to your Representative in Congress. We are focusing this action on the House first, because bills usually move through the House of Representatives before the Senate. And we are asking you to send it […]

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We now have Cosponsors from all 50 States!

February 19, 2022

Thanks to your advocacy, we now have cosponsors in all 50 States! Check the map below to see the 13 states that have their entire congressional delegation on board. Lymphedema Awareness Month is just around the corner. If you need educational materials visit our Increasing Awareness page. And if you haven’t yet, please consider submitting […]

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Materials for Lymphedema Awareness Month

February 13, 2022

Lymphedema Awareness Month is just a few weeks away. If you are hosting or attending an event, or just want to help spread awareness amongst friends, family, and colleagues, we have numerous materials available, such as the item pictured below. Everything on our Increasing Awareness page is available via FREE download, or you can order […]

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Announcing February’s Action Item

February 7, 2022

This month, you have the opportunity to not only share your story with us, and we will then share it with your members of Congress, but also directly with this administration!  Last week, the Cancer Moonshot initiative was reignited. It aims to: “cut the death rate from cancer by at least 50% over the next […]

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January Recap – 17 new Cosponsors and over 4,000 Letters to Congress!

January 31, 2022

Thanks to everyone who participated in our January action item, we made a lot of progress this month.  Over 1,300 advocates sent email letters to their three members of Congress, totalling over 4,000 letters urging Congress to pass the LTA in 2022!   All of this outreach also garnered the bill 17 more cosponsors, launching […]

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Final Week – January Action Item

January 23, 2022

Hundreds of advocates nationwide have used our new action alert to ask Congress to pass the Lymphedema Treatment Act in 2022, but according to our records, you haven’t yet.  Please click here to sign and send our pre-written letter to Congress. This action takes less than one minute. All that is required is your name […]

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Sign this new letter to Congress about passing the LTA this year!

January 17, 2022

This will take less than one minute. Can you please sign our new letter to Congress, urging them to pass the Lymphedema Treatment Act this year?  Click HERE and scroll to the bottom to enter your name and address. Even if you’ve taken action in the past, it’s important that you do this now.  Each […]

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NEW Action Alert for 2022!

January 10, 2022

Each cycle of Congress is two years, meaning that we have just entered the second year of this Congress. On the bright side, all of our progress in 2021 carries over. On the not so bright side, if the Lymphedema Treatment Act does not get signed into law by the end of this year, we […]

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Thank You and Happy Holidays!

December 20, 2021

Thank you for all your advocacy in 2021! Each year brings us closer to seeing the Lymphedema Treatment Act signed into law, and closer to ensuring that all patients will have insurance coverage for their compression garments and supplies.  We’d also like to recognize and thank our supporting sponsors – our Industry Partners, Jobst, L&R USA, […]

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Spread Awareness this Holiday Season

December 16, 2021

Our print-at-home fliers and orderable information cards pictured below are perfect for handing out at holiday gatherings, or tucking into gifts and cards.  Additionally, print-ready files of our new poster, seen here, are now available in four sizes: 8.5×11 (standard letter-size paper), 8.5×14, 11×17 and 28×48.  Click on the poster to view it full size […]

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Check out our new poster!

December 6, 2021

We were thrilled to recently participate in the Canadian Lymphedema Framework international conference, at which we premiered this poster chronicling our work. The abstract for the poster can be read here. Advocacy groups in other countries who are also pursuing or hoping to pursue improvements to insurance coverage can benefit from seeing what strategies have […]

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Support Better Access to Compression Supplies on Giving Tuesday!

November 30, 2021

Our work to pass the Lymphedema Treatment Act and ensure that all patients have insurance coverage for their vital compression supplies would not be possible without your support!  Your contributions provide the critical resources that enable us to commission studies, provide free educational materials, empower advocates to make their voices heard, meet with lawmakers and their staff, and so much more!  Donations of […]

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We Are Thankful For You!

November 24, 2021

Thanks to our advocates, members of Congress from 49 states, three territories, and the District of Columbia are cosponsoring the Lymphedema Treatment Act!  We are grateful to all those who have shared their story, joined their state’s advocacy team, sent emails, made phone calls, and signed up to join virtual Congressional meetings. We hope you […]

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Why Your Story Matters

November 19, 2021

Patient stories are powerful.  We can give members of Congress and their staff facts and statistics, but it’s hearing how lymphedema and the lack of insurance coverage for compression garments impacts their constituents lives that makes them care, and inspires them to act.  Our records indicate that you have not yet shared your story, and […]

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Order Your Lymphedema Information Cards!

November 10, 2021

Our Information cards, available in two sizes and pictured below, are perfect for handing out at holiday gatherings, or tucking into gifts and cards.  Click HERE to order your lymphedema information cards. We have partnered with a print shop to provide these items to you as economically as possible. We will cover the printing costs, […]

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We Now Have Super Majorities in the House & Senate!

November 3, 2021

A huge thank-you to all those who headed our recent calls to action. We achieved our goal of reaching 290 cosponsors in the House, meaning we now have super majority levels of support in both chambers!  The list of offices not yet cosponsoring is getting shorter and shorter and can be seen below. If any […]

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More Ways to Connect With Your Members of Congress

November 1, 2021

Although most are still virtual, members of Congress are beginning to hold Town Hall meetings again. The Town Hall Project is a great site for finding out about these events. Right now, there are several upcoming Town Hall meetings with members of Congress who are not yet cosponsoring the Lymphedema Treatment Act. You can see […]

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We are so Close to Having a Super Majority in the House!

October 27, 2021

We recently reached a super majority level of support in the Senate, and are close to doing so in the House as well! Below I explain why a super majority matters. Please see the list below for who is, and who is not, currently supporting the bill. If you are a constituent of any member […]

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Want to Join Virtual Meetings with your Congressional Offices?

October 11, 2021

Please complete this form, if you have not already done so, if you are interested in attending a virtual meeting with one or more of your Congressional offices in support of the Lymphedema Treatment Act. We especially need constituents of the members of Congress listed below, who have not yet cosponsored the LTA. Many offices […]

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“Pinktober” is an Opportunity to Raise Awareness & Support

October 4, 2021

This week, please consider sending a letter to the editor and sharing this press release with your local media outlets. Thank you for your support! “When I was diagnosed with advanced breast cancer in 2007,  I feared my two young children would grow up without a mother.  But as hard as cancer was, in many […]

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