Countdown to Lymphedema Lobby Days 2020

by Heather on January 20, 2020

There are just 10 days left to reserve discounted hotels rooms for Lymphedema Lobby Days 2020, and 20 days left to register. 

Discounted rooms are available until January 29th or until sold out, and registration closes on February 16th. Don’t delay – links to register, book your hotel room if you need one, and details are on our Lymphedema Lobby Days page.

Our goal is to meet with all 100 Senators and have participants from all 50 states. We will also be meeting with select House members. Your presence will make a difference! 

Although the bill has already passed the House, non-cosponsoring House members can still cosponsor, and each one who does gives another nudge for the Senate to take up the bill. We’ve picked up two more House cosponsors in the last week.

If your Representative in the House is still not cosponsoring (see list below) it’s not too late. Call and email them using the information below, and mention all the other members in your state already in board.

Thank you for your advocacy and hope to see you March 1st and 2nd at Lymphedema Lobby Days 2020!

Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaTreatmentAct.org

Phone numbers for all non-cosponsoring House offices and a call script are below. If you are unsure who your House Representative is click here and enter your zip code. Remember to be polite and concise. Every call counts!
 

CALL SCRIPT FOR NON-COSPONSORS“I am a constituent calling in support of the Lymphedema Treatment Act, which was passed in the House on December 12, 2019. This bipartisan bill has over 370 House cosponsors and I would like for Representative [name] to cosponsor as well. This issue is important to me because… [2-3 brief sentences]. Please ask Representative [name] to cosponsor House bill number H.R.1948, the Lymphedema Treatment Act.” 

Tips on how to personalize your phone message are at the bottom of this page. 

AL-02 Martha Roby 202-225-2901 
AL-03 Mike Rogers 202-225-3261 
AL-06 Gary Palmer 202-225-4921 
AZ-05 Andy Biggs 202-225-2635 
CA-04 Tom McClintock 202-225-2511 
CA-12 Nancy Pelosi 202-225-4965 
CA-18 Anna Eshoo 202-225-8104 
CA-22 Devin Nunes 202-225-2523 
CA-23 Kevin McCarthy 202-225-2915 
CA-34 Jimmy Gomez 202-225-6235 
CA-39 Gilbert Cisneros 202-225-4111 
CA-51 Juan Vargas 202-225-8045 
CO-04 Ken Buck 202-225-4676 
GA-07 Robert Woodall 202-225-4272 
GA-12 Rick Allen 202-225-2823 
GU (Guam) Michael San Nicolas 202-225-1188
ID-01 Russ Fulcher 202-225-6611 
IL-15 John Shimkus 202-225-5271 
KY-06 Andy Barr 202-225-4706
LA-01 Steve Scalise 202-225-3015 
LA-03 Clay Higgins 202-225-2031 
MA-01 Richard Neal 202-225-5601 
MA-09 William Keating 202-225-3111
MD-05 Steny Hoyer 202-225-4131 
MI-03 Justin Amash 202-225-3831 
MI-06 Fred Upton 202-225-3761 
NC-03 Greg Murphy 202-225-3415  
NC-05 Viginia Foxx 202-225-2071 
NC-06 Mark Walker 202-225-3065 
NC-09 Dan Bishop 202-225-1976
NC-10 Patrick McHenry 202-225-2576 
NC-13 Ted Budd 202-225-4531
NJ-06 Frank Pallone Jr. 202-225-4671 
NV-04 Steven Horsford 202-225-9894
NY-23 Tom Reed 202-225-3161 
OH-01 Steve Chabot 202-225-2216 
OH-04 Jim Jordan 202-225-2676 
OH-08 Warren Davidson 202-225-6205 
OH-16 Anthony Gonzalez 202-225-3876
OR-02 Greg Walden 202-225-6730 
PA-09 Daniel Meuser 202-225-6511 
PA-10 Scott Perry 202-225-5836 
SC-03 Jeff Duncan 202-225-5301 
SC-04 William Timmons 202-225-6030 
SC-05 Ralph Norman 202-225-5501 
SC-06 James E. Clyburn 202-225-3315 
SD-At Large Dusty Johnson 202-225-2801
TN-06 John Rose 202-225-4231 
TN-07 Mark Green 202-225-2811 
TN-08 David Kustoff 202-225-4714 
TX-02 Dan Crenshaw 202-225-6565 
TX-08 Kevin Brady 202-225-4901 
TX-10 Michael McCaul 202-225-2401 
TX-19 Jodey Cook Arrington 202-225-4005 
TX-21 Chip Roy 202-225-4236 
TX-22 Pete Olson 202-225-5951 
TX-24 Kenny Marchant 202-225-6605 
TX-26 Michael Burgess, MD 202-225-7772 
TX-27 Michael Cloud 202-225-7742 
TX-31 John Carter 202-225-3864
TX-33 Marc Veasey 202-225-9897 
UT-04 Ben McAdams 202-225-3011
VA-06 Benjamin Cline 202-225-5431 
VA-08 Don Beyer 202-225-4376 
VA-10 Jennifer Wexton 202-225-5136 
WV-02 Alex Mooney 202-225-2711 
 

TIPS ON PERSONALIZING YOUR MESSAGE:

The most effective things you can convey are why your doctor prescribed compression garments are essential to your health and quality of life. The focus should be on their medical necessity, and how they enable you to manage your lymphedema, prevent complications like infections, keep you able to work, take care of your family, etc. – whatever is most applicable for you. 

The most important thing to avoid saying is that they are expensive. Cost, or a person’s ability to afford to pay out of pocket, is not a reason why something should be covered by insurance, only medical necessity is. Keep the focus on compression garments being essential for the treatment and management of lymphedema, just as insulin is to a diabetic.

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