Over the last few years we have collected over 500 patient and caregiver stories through our My Lymphedema Story campaign.
Thanks to the efforts of those who attended our Lymphedema Lobby Days, and the work of one dedicated member of our groupwho lives in DC, we have just completed hand-delivering every single one to the Senate!
Next up will be a much larger task – doing the exact same thing in the House, where there are far more offices. If you’d like your story included and haven’t submitted it please do so through the My Lymphedema Story page of our website.
Our stories are powerful and persuasive, and by sharing your story you’ll be making a difference!
You can also support this project, and all of the work we do to raise awareness about lymphedema and improve insurance coverage through passage of the Lymphedema Treatment Act, by making a donation to our all-volunteer group.
Thank you for your advocacy!
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaTreatmentAct.org