Resources
Below is an evolving list of information sources that may be useful to those who suffer from lymphedema and/or their caregivers. If you would like to recommend an addition to this page please Contact Us with your suggestion.
Lymphedema Organizations:
American Lymphedema Framework Project – Brylan’s Feet Foundation
Lighthouse Lymphedema Network – Lymphatic Education & Research Network
Lighthouse Lymphedema Network – Lymphatic Education & Research Network
Lymphedema Resources – Lymphology Association of North America
National Lymphedema Network – Ninjas Fighting Lymphedema Foundation
Northwest Lymphedema Center – Process to Progress
National Lymphedema Network – Ninjas Fighting Lymphedema Foundation
Northwest Lymphedema Center – Process to Progress
Lymphedema Providers –
directories to find lymphedema doctors and/or certified therapists in your area:
American Lymphedema Framework Project – Lymphology Association of North America
Lymphedema Blog– Lymph Notes – North Carolina Lymphedema Clinics and Therapists – Step Up-Speak Out
Lymphedema Blog– Lymph Notes – North Carolina Lymphedema Clinics and Therapists – Step Up-Speak Out
Compression Garment & Compression Pump Assistance Programs:
National Lymphedema Network / Marilyn Westbrook Garment Fund
Ninjas Fighting Lymphedema Foundation – Northwest Lymphedema Center
Susan G. Komen (Breast Cancer specific) –HERS Breast Cancer Foundation (Breast Cancer specific)
Pretty in Pink Foundation (NC and Breast Cancer specific) – Brylan’s Feet (Children only)
Ninjas Fighting Lymphedema Foundation – Northwest Lymphedema Center
Susan G. Komen (Breast Cancer specific) –HERS Breast Cancer Foundation (Breast Cancer specific)
Pretty in Pink Foundation (NC and Breast Cancer specific) – Brylan’s Feet (Children only)
Connie Cares (pumps only)
Also check with your local American Cancer Society chapter, if cancer related lymphedema – some have garment assistance programs, but they aren’t generally advertised.
Lymphedema Events:
Ongoing ~ LE&RN’s Symposium Series, free and online
Additional lymphedema-related events can be found on the LANA Calendar.
If you have an event you would like listed here please contact us.
Lymphedema Online Groups:
LymphActivist’s Site – Lymph Notes – Lymphie Strong
Lymphedema Community – Lymphedema People – Step Up-Speak Out – The Lymphedema Mavens
Lymphedema Community – Lymphedema People – Step Up-Speak Out – The Lymphedema Mavens
Lipedema Resources:
Primary Lymphedema Resources:
National Organization for Rare Disorders –
EveryLife Foundation / Rare Disease Legislative Advocates
EveryLife Foundation / Rare Disease Legislative Advocates
Scholarship Opportunities:
Lymphedema Studies, Clinical Trials, etc –
please participate to help researchers find better treatments and maybe even a cure!
Parents of Children with Lymphedema Study
ULTRA Study (clinical phase 2 trial)
ULTRA Study (clinical phase 2 trial)
Apps for Lymphedema:
LymphTracker (tool to track your measurements)
Lymphedema Treatment Products, Manufacturers:
BiaCare – BSN Medical /Jobst – Farrow Medical Innovations – ImpediMed – JoViPak Corporation
JUZO – Lohmann & Rauscher – LympheDIVAs – mediUSA – My Sassy Sleeve – Solaris
Solidea Medical – Torbot Group/Jobskin Division
JUZO – Lohmann & Rauscher – LympheDIVAs – mediUSA – My Sassy Sleeve – Solaris
Solidea Medical – Torbot Group/Jobskin Division
Lymphedema Treatment Products, Suppliers:
Brown Medical Industries – Carolina Apothecary – Close to You – EZMD – Hope 4 Healing – In The Pink
Lymphedema Products – Luna Medical – Orthokinect – SunMED Medical – Wear Ease
Lymphedema Products – Luna Medical – Orthokinect – SunMED Medical – Wear Ease
Miscellaneous Cancer and Lymphedema-Related Information & Products:
