We were thrilled to share this video about our efforts and accomplishments here in the United States at a recent international conference held in Italy, Lymphedema and Lipedema Across Borders: Comparing Experiences.
As part of our expanded mission to improve education and awareness, we’ve also been working with other organizations. We recently collaborated with the National Organization for Rare Disorders (NORD) to help them update their information page about Primary Lymphedema.
And of course, we are continuing to work with the Centers for Medicare and Medicaid Services (CMS), in partnership with other stakeholder groups, to address unresolved coverage and reimbursement issues. We will pass on answers and updates as we receive them from CMS.
Meanwhile, as a reminder to suppliers and providers, CMS hosts a live chat every Monday from 3:00-4:00pm Eastern to answer questions – to register, scroll down to the “Listing of Events” and click on the day you would like to attend.
For patients, if you have been denied coverage for a compression garment order placed on or after January 1, 2024 – whether you have traditional Medicare or any other plan – we want to know. We are now tracking this through our Denial Reporting Form in order to identify where additional advocacy may be needed.
Thank you so much and we hope you find this information helpful!
Heather Ferguson
Founder & Executive Director
Lymphedema Advocacy Group
LymphedemaTreatmentAct.org
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