David’s Story

March 25, 2014

Every day my leg calves grow to twice their normal size. My knees disappear.  Every day I fight with all my strength to pull thigh-high compression stockings into place to keep inevitable leg swelling suppressed.  At the end of every day I sit quietly for an hour or more with portable leg pumps pressing excess […]

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Donna’s Story

March 25, 2014

I have what they call Latent Primary Lymphedema. I was 61 years old and had an epidural for pain in my back. A few days afterwards my ankles started to swell. I elevated my legs, but it didn’t help. Within weeks the swelling went up my calf and into my right foot and toes. I […]

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Mary Beth’s Story

March 25, 2014

In short, I am an 11 year breast cancer survivor, who was very fortunate to not have developed Lymphedema until I was told I needed to have a venogram done due to some protruding veins in arm. My arm was tagged at the hospital due to my mastectomy and lymph node removal. However, the vascualar/heart […]

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Carol’s Story

March 2, 2014

I was diagnosed with lymphedema in the spring of 2005 after having had a mastectomy in 2000. In 2006, the breast cancer returned in my axilla. After radiation treatment to the affected arm, I had a full blown case of lymphedema. My right arm was two times its normal size. It was a heartbreaking situation […]

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Susan’s Story

March 2, 2014

Three years ago December 13 , I went to a Baltimore Hospital. They had me sitting in the er for 5 hours. When they finally took me back and was about to send me home something happened. The next miuute the left leg started to turn black. I went into septic shock. I was transfered […]

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Paulette’s Story

March 2, 2014

I was told I had Breast Cancer in 2001. I went through treatment and noticed a swelling in my left hand and arm. Shortly there after I was diagnosied with Lymphedema. I went to Sister Kenny in Minneapolis and learned how to manage my Lymphedema and was successful for several years until I was told […]

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Dorothy’s Story

February 21, 2014

I developed lymphedema in 1997 after stage 4 cervical cancer. I had radiation and it caused scaring in my left groin and they done a lymphedema discetion . At this time I had insurance and it paid for my garments. I couldn’t run or get on the floor to play with my grandkids. I worked […]

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Deb’s Story

February 18, 2014

On Valentines Day, 2013 I found out I had breast cancer. I was fortunate that they caught it early and I was sent to the leading cancer center in the state of Michigan to begin my course of treatment. During my initial consultation, one of the specialists mentioned that one possible side effect of the […]

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Mary’s Story

February 18, 2014

I was diagnosed with lymphedema prae cox 45 years ago. I was told that I was born with damaged lymph glands in my legs at the Mayo clinic in Rochester, MN. At the age of 22. I was told I would never be able to continue full time teaching and raise a family at the […]

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Diana’s Story

February 9, 2014

My lymphedema was diagnosed about 10 years ago. Shortly after my first rounds with a severe case of cellulitis, I became seriously ill. All I knew in the befinning was that I had this infection that seemed to quickly spread, and landed me in the hospital. I had just found a temp job but lost […]

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Kathy’s Story

February 6, 2014

I have Lymphedema secondary to Lipedema which is a chronic hereditary disorder of the adipose tissue generally affecting the legs, which causes the legs, and sometimes the arms, but not the feet, to accumulate fatty tissue. An overconservative estimate of 17 million women in the US, and 370 million women worldwide are affected like me. […]

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Bonnie’s Story

January 31, 2014

Hi my name is Bonnie. I was diagnosed with Lymphedema after having open heart surgery 5 years ago. I have it in both of my legs. In the beginning I had to drive hour and 15 minutes 1 way 3 times a week for my wraps. It’s very hard to walk with the wraps on both […]

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Jill’s Story

January 23, 2014

In a former life I was an Human Resources Director/Consultant/Recruiter for 15 years.  Then spent 14 years at my Dream Job being a Flight Attendant for Delta Airlines.  Just 43 days after my retirement in Nov. 2008, I was diagnosed with vulvar cancer.  On Jan. 17, 2009, a 5 hour surgery excised a great deal […]

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Kelly’s Story

January 23, 2014

I have had Lymphedema in both legs since 2004. I had skin removal surgery along with Lipo, from this, my lymph nodes were destroyed. I wear custom hosiery, and receive Physical Therapy from a specialist in Lymphedema Treatment. Therapy includes massages, that open up the lymph system, and then I am put on a pump […]

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Helen’s Story

January 22, 2014

I developed lymphedema ten years ago from having had cancer. My arm had a bug bite and swelled up to the size of the “incredible hulk”. I was fortunate that the nurse at the emergency room realized that it was lymphedema.   Physical therapy brought the swelling down and then began my days of compression sleeves, […]

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Charla’s Story

January 22, 2014

I developed lymphedema of the upper extremity following left side thoracic outlet surgery in 2011. It went misdiagnosed for 18 months. All of the lymph nodes on my left side have failed and my right side has started to weaken. I will require manual drain therapy for the rest of my life. Without therapy lymph […]

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Barbara’s Story

January 20, 2014

Although I am a college educated person, instead of being able to contribute to society, I am sidelined in life now with stage 3 lipolymphedema, with which I am in constant pain and increasingly becoming immobile. I feel I am trapped in my painful shell with no future. I SHOULD be receiving MLD treatments, but […]

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Ann-Marie’s Story

January 20, 2014

I was diagnosed with Vascilitis in 2007.  The Vasculitis blew through my legs, vein and muscle tissue.  My legs became very painful, heavy, and fragile,  Any small cut would cAuse  them to weep for days. My doctor noticed that my legs were getting bigger and more  misshapen and suggested I get treatment for my Lymphedema. […]

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Deanna’s Story

January 20, 2014

I strongly believe that this amendment needs to be passed immediately!!!! I am on disability and very low income. I have had lymphedema since 2004.. and is an on going situation and needs to be continuously treated. The requirements are that you get new garments year to keep this in control these garment can NOT […]

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Patricia’s Story

January 20, 2014

I first exhibited symptoms of primary lymphedema when I was in high school. Someone signed my yearbook, “Remember me when your ankles swell.” My mother and grandmother both were diagnosed with Milroyce Disease, and I watched them both suffer and do their best to contain the swelling, to no avail, and eventually die of complications […]

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