From the category archives:

Newsletter Archives

Important Progress Update

July 27, 2019

  On Wednesday of this week the Senate Finance Committee put forth the Prescription Drug Pricing Act of 2019. The Lymphedema Treatment Act was one of a number of other provisions then added as amendments! On Thursday, some of the amendments, particularly those not related to drug pricing, were withdrawn by the sponsors of those […]

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Our House bill tops 300 Cosponsors!!!

July 22, 2019

Our House bill now has 302 cosponsors! Check the list below to see if your Representative is a cosponsor. If he or she is not, please use the phone number and call script provided to contact his or her office this week. This is the final week the House is in session before the long […]

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The 60 House Members who Cosponsored Last Year but Haven’t Yet This Year

July 15, 2019

Is your Representative on the list below? If so, he or she is among the 60 House members who cosponsored the LTA in the last Congress but have not signed back on yet this session. Please take a moment to call his or her office using the phone number and script provided below my signature. […]

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The 39 SENATORS who HAVE NOT COSPONSORED

July 8, 2019

  If one or both of your Senators are among the 39 who are not yet cosponsoring the LTA please contact their offices this week! ACTION STEPS: 1.) Call his or her office using the phone number and call script here – this has the most impact! 2.) Send an email using this form 3.) […]

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We all know someone who is at risk for Lymphedema

July 1, 2019

  Although primary lymphedema like my son was born with is rare, secondary lymphedema, particularly consequent to cancer treatment, is not. Cancer survivors have a lifetime risk of developing lymphedema. In honor of July’s Sarcoma Awareness Month, we are proud to share our board member Bill McCann’s survivorship story. Sarcoma has a 30% lymphedema incidence […]

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Members of Congress are home again next week!

June 27, 2019

  Next week is a recess week for Congress, meaning that members will be home in their states and districts. Some will be attending July 4th celebrations and others will be holding Town Hall meetings.   Here are three ways you can find out about these events, which are often announced with very little notice: […]

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61% Congressional Support!

June 17, 2019

  61% of the members of Congress have already cosponsored the LTA, but 39 Senators and 167 House members have not signed on yet. Persistence is the key to getting their support! Over 7,000 bills have already been introduced in this Congress. Over 600 of them are healthcare bills. Each congressional aide typically handles several […]

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More Opportunities to Connect, Learn, and Advocate!

June 9, 2019

Could you or someone you know use a little LTA 101? We have a brief presentation available as a document or Power Point slides that includes all of the basic, essential information. If you have primary lymphedema you are invited to participate in Rare Across America with the Rare Disease Legislative Advocates group. This is an […]

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The 40 SENATORS who HAVE NOT COSPONSORED

June 3, 2019

If one or both of your Senators are among the 40 who are not yet cosponsoring the LTA please contact their offices this week! ACTION STEPS: 1.) Call his or her office using the phone number and call script here 2.) Send an email using this form 3.) Forward this email and ask others to […]

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Help Raise Awareness

May 30, 2019

This Sunday, June 2nd, is National Cancer Survivors Day. Two-thirds of all cases of lymphedema are cancer-related, and all cancer survivors have a lifelong risk of developing lymphedema. Even if you are not a cancer survivor, you can help raise awareness about lymphedema by writing a letter to the editor about the connection between cancer […]

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Attend a Town Hall in Support of the LTA!

May 24, 2019

  Town Hall meetings are great opportunities to speak to your members of Congress directly! Due to the Memorial Day Holiday and Congress being in recess next week, there are more than usual scheduled for this weekend and all throughout next week. Here are three ways you can find out about these events, which are […]

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The 99 House Members who Cosponsored Last Year but Haven’t Yet This Year

May 22, 2019

  Is your Representative on the list below? If so, he or she is among the 99 House members who cosponsored the LTA in the last Congress but have not signed back on yet this session. Please take a moment to call his or her office using the phone number and script provided below my […]

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Join your Lymphedema Advocacy State Team today – it’s FREE!

May 20, 2019

We have grassroots advocacy teams in all 50 states! If you haven’t joined your state’s team yet here are a few reasons why we hope you will consider it. No prior advocacy experience is needed. The time commitment is entirely up to you. It won’t cost you a thing and you can do everything needed […]

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Recap of our 2019 Lymphedema Lobby Days

May 13, 2019

Last week, the amazing advocates who participated in our 2019 Lymphedema Lobby Days met with 226 Congressional offices from 46 different states! We’ve already gained dozens of more cosponsors as a result, bringing us to 201 in the House and 60 in the Senate. Another phone call and email from you could help tip the […]

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Be part of our Lymphedema Lobby Days by taking these actions from home!

May 6, 2019

Today and tomorrow, advocates from around the country will be meeting with hundreds of congressional offices in Washington, DC in support of the Lymphedema Treatment Act! You can support our Lymphedema Lobby Days by taking these actions from home! 1.) Spread the word by sharing our posts and tweets on Facebook and Twitter. 2.) Call […]

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Newly Published Op-ed About the LTA!

May 4, 2019

This week, The Hill published an op-ed about the LTA written by our two previous House sponsors, Dave Reichert (R-WA-8) and Larry Kissell (D-NC-8). The Hill is an online and print publication that is widely read by members of Congress and their staff, and the timing of this exposure couldn’t be better! Next Monday and […]

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Please contact your Senators this week!

April 29, 2019

Please contact your Senators this week! The phone numbers with call script and the form to send an email is here. Our new Senate email form now differentiates based on current cosponsorship status. The template text will reflect that, but please make sure to personalize the email, especially if the Senator is not yet cosponsoring. […]

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In Memoriam to our Board Chair, Elaine Eigeman, an Extraordinary Advocate!

April 26, 2019

It is with great sadness that we share the news of the passing of Elaine Eigeman, Board Chair of the Lymphedema Advocacy Group.   Elaine lived with lymphedema for 20 years, after developing it as a result of bilateral breast cancer treatments in 1999. She was a driving force behind the Lymphedema Treatment Act since […]

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Why the new “290 Rule” is important for the LTA!

April 22, 2019

This Congress, the House of Representatives adopted several new rules, one of which could be a game changer for bills like ours. House bills with more than 290 cosponsors are now guaranteed to get a floor vote, which is intended to expedite bills with broad, bipartisan support. In the last Congress our bill finished with […]

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We want to share your Lymphedema Story in DC!

April 16, 2019

In a few weeks, advocates from around the country will be meeting with members of Congress for our 2019 Lymphedema Lobby Days. We want to take your stories with us! If you have not already submitted your story to our My Lymphedema Story campaign please do! These stories are shared with members of Congress and […]

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